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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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HEy girl! My heart goes out to you - this is a really scary time. I was only diagnosed 4 months ago and have been in the hospital 3 times (for a total of 30 days since my diagnosis) HOWEVER I was stage 4 by the time I was diagnosed so that makes sense......What problems are you experiencing right now? Is it breathing and swallowing? Redtail is right. That DOES seem like a long time to wait for another appt. Do you have another nuero you can see or are you already "in" with this doc? I'm surprised your mestinon isnt doing anything but upsetting your stomach - I didn't have that problem, but the steroids TEAR ME UP! I really didn't feel better until I had a dose of IV IG and then started steroids. THey made me hungry and moody, but I could swallow and for that I will be forever grateful! You won't always feel this bad ......it will get better!
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Originally Posted by alissa1979
Since I was diagnosed only 16 days ago I have been reading all I can to get info. Still, the fact is that my mestinon isn't working and I don't go back to the doc until Aug. 14. I called but he wants to see me before he changes anything. Is there any med out there that will make me feel normal again or is this just the way I'm gonna feel forever??? I've read that it can get worse for the first 2 to 3 years!!! Is that only if your not being treated or for everyone???Sorry for all the questions. I'm thankful that I found this site. It's nice to get answers from people that really understand and are going through what I am  |
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Erin
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08-18-2008, 02:17 PM
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