NeuroTalk Support Groups - Worst experience EVER!!!!!!! NEVER AGAIN!

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - Worst experience EVER!!!!!!! NEVER AGAIN! (https://www.neurotalk.org/myasthenia-gravis/50521-worst-experience.html)

Quote:

Originally Posted by erinhermes (Post 332466)

:hug:I know, between the 2 of us we haven't had much luck have we? I just don't get it. You hear stories of people who go into remission immediately and are perfect and then you have me:(..........Have you ever had plasmaphoresis? Ever seen it? It was gross! 5 days - and now I've got 4 days of IV IG -, but that always makes me feel better........How are you? I've been worried about you ever since I read your blog about it probably not being MG. Hand in there:hug:Let me know if you need anything!

I just come home from holiday without internet!! so that's why I reply late. I hope you have gotten out from the hospital by now - it really sounds like a horrible experience. Are you feeling any better now?

Wow...I am simply amazed at this....my son's central line was placed in the O.R. He was sore in his neck when he came out, but only for a little while...he said it was like a bee stinging him, but said he could handle it....then as far as the plasmapheresis went...he loved it...by the second treatment he was feeling better and after 4 he was like a normal 8-year-old boy...full of energy and smiling from ear to ear. I am soooo sorry to hear about your bad experience...keep your chin up and feel better soon!:hug: