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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-28-2008, 03:58 PM
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07-30-2008, 08:16 PM
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Wow...I am simply amazed at this....my son's central line was placed in the O.R. He was sore in his neck when he came out, but only for a little while...he said it was like a bee stinging him, but said he could handle it....then as far as the plasmapheresis went...he loved it...by the second treatment he was feeling better and after 4 he was like a normal 8-year-old boy...full of energy and smiling from ear to ear. I am soooo sorry to hear about your bad experience...keep your chin up and feel better soon!
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| "Thanks for this!" says: | erinhermes (08-02-2008) |
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..........Have you ever had plasmaphoresis? Ever seen it? It was gross! 5 days - and now I've got 4 days of IV IG -, but that always makes me feel better........How are you? I've been worried about you ever since I read your blog about it probably not being MG. Hand in there
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