FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
|
07-23-2008, 07:25 PM | #1 | |||
|
||||
Member
|
Erin,
I'm sooo sorry for you having to tolerate that. I'm not familiar with some of the things you mentioned, but anything poking into the jugluar and feeling it... YEESH! I promise I'm not making light of the situation, beautiful... but some male advice? Your doc and the husband... CUT OFF! until further notice. (Just keep the doc at bay, and push hubby even further, milk this one!) Beyond that, I hope you at least get some good news from the procedure.
__________________
You can't have everything. Where would you put it? -Steven Wright Once you change your mind, you can change your life. -Della Reese . Always outnumbered... Never outgunned . *I* am the MonSter that MS fears |
|||
Reply With Quote |
07-26-2008, 05:30 PM | #2 | |||
|
||||
Wise Elder
|
Erin, I too am sorry you had to find out that way. I had no idea either. Are you home now?
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
|||
Reply With Quote |
07-26-2008, 09:04 PM | #3 | |||
|
||||
Senior Member
|
Hey there! I'm still at the hospital - 5 days of plasmaphoresis followed by 4 days of IVIG.......Today has been MUCH better. I always feel great after my IV IG's, though I still fear the needles big time! It has been so great that my doctor told my nurse to "keep feeding me whatever they have been" b/c I'm so much happier now. I'm still scared of the line in my neck and really worried about when they take it out, but do realize how blessed I am to have such great doctors......
|
|||
Reply With Quote |
"Thanks for this!" says: | SandyC (07-27-2008) |
07-26-2008, 09:23 PM | #4 | |||
|
||||
Senior Member
|
I laughed sooooo hard when I read your line about "cutting off my hubby" - done! At least for a while, cuz' I'm going to have to be here for at least 4 more days (now I've got 4 IV IG treatments set up)..........Trust me, avoid plasmaphoresis if you can. It was really bad. Really, really bad. I just started on Cellcept and am hoping for remission ASAP. I just had a thymectomy April 22 so I really didn't expect to be here so soon, but you never know......Anyways, thanks for your advice! It was great! I hope to hear from you again soon! Erin
Quote:
|
|||
Reply With Quote |
"Thanks for this!" says: | SandyC (07-27-2008) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
My worst pain? | Caregivers Support | |||
I am my own worst enemy.... | Multiple Sclerosis | |||
Best/worst | Social Chat | |||
What Was Your Worst Diagnosis Day? | General Health Conditions & Rare Disorders | |||
Waiting is the Worst........................ | Bipolar Disorder |