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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Junior Member
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following my "outpatient" surgery last Mon. I was prepared to stay over 1 nite if I feel good afterwards...not 6 nites
![]() My breathing didn't crash too hard, thankfully, but the rest of my muscles weren't too happy about the ordeal (for a day or so I could barely move my legs)...and it hurt alot more than was advertised...it felt like I was in labor the first few days. Now the pain is much better and I was able to walk with a walker ~20ft. At least I'm making progress--just too slow for my liking. Is this typical for MG? I'm just really ****** off to be knocked down this low again I'm probably going to miss my GI/swallowing appoint at Hopkins this Wed...I don't think I will be up for the trip by then. |
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#2 | |||
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Grand Magnate
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Sorry you've been in the hospital!!!
![]() Glad you are at least noticing some progress. Good luck and be well, little eeyore donkey. ![]() (Use those hind legs when they're not treating you right!) ![]()
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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#3 | |||
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Junior Member
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The new J-tube got clogged last nite...I don't know what they are going to do now..apparently since it was just placed it can't be easily unclogged
Needless to say I'm, a little depressed |
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"Thanks for this!" says: | Twinkletoes (08-24-2008) |
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#4 | ||
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Yappiest Elder Member
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#5 | |||
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Wise Elder
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I am so so sorry your going through so much. I am praying for you that this will be over soon and you'll feel better. Is it possible if your still in the hospital that they can do your GI test there?
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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#6 | |||
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Senior Member
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Hey there! I just read your post.....I'm so sorry to hear you've been through such an ordeal......I just don't understand why they can't give you a diagnosis and treat you.......You've had such a hard time
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Erin . |
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#7 | ||
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Junior Member
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Have you explored the possibility of Chiari Malformation?
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#8 | |||
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Member
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Hi Eeyore
what can I say, it ain't fair ![]() I really really hope things start looking up soon! ![]() ![]() ![]() redtail |
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#9 | |||
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Grand Magnate
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How you feeling today, little donkey?
__________________
Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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