Hey Redtail! I'm glad to hear you're going in for IV IG - I call that stuff "liquid gold" cuz' it has almost a "magical" effect on me - I looooooove that stuff! I have alreay begged my neuro tp give me that in the future versus plasmaphoresis - that was way too scary - I guess I'm just neurotic, but this disease has already taken so much of my control away that I cling to the little bit I have.....weird, huh? You are going to feel GREAT after your IV IG - I just know it! When are you going in? I'm going to do some serious praying for you.....for remission, all of it! I've forgotten, what meds are you on right now? My doc is trying to "wean" me off of steroids and put me on Cellcept - my hubby says he has noticed a difference recently..........I have been able to put in serveral hours a day of work recently, which is a BIG improvement! You know how that goes, though, up one day, down the next..........I am on antidepressants now - Paxil, and I hope they kick in soon! I keep hoping I'll wake up one morning and this will all be a bad dream, but then reality sets in again! I have terrible night sweats, do you? I have to change clothes over and over - it's so gross! My face has gone down quite a bit, though. No one recognized me before -it was weird! I am on over 20 pills a day right now - from Cellcept to Xanax (for anxiety)............but I do feel like remission is RIGHT around the corner - I know you feel knid of puny right now, but when you feel better, please let me know how you are - I miss talking to you!
Erin