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Old 08-24-2008, 05:30 PM #1
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erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
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15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Unhappy Feeling blue......how do you guys handle having MG?

Hello all! I"m feeling a little blue today. My son starts school 2morrow and I'm too tired to get off the sofa again, though I'm worried if I call my neuro I'll be back in the hospital once again - he's treating my MG very aggressively. How do all of you handle this disease emotionally? I'm thinking about going to counseling for this b/c I just feel so helpless and blue.......I had a pretty good week but am now wiped out. Since my diagnosis (March 6th) I've been in the hospital for about 1 month and am starting to feel like this is how it's going to be for the rest of my life......I know I sound whiny, but I'm just mourning my former life and health. It seems like it's always 1 step forward, 2 back. The worst of it is that my sis and I were always very close, but now she has completely pulled away and my hubby (though well intentioned) wants me to "do more, get out of the house more". He just doesn't understand that I'm too tired to get off the sofa/out of the house. People around me call this my "lazy bone" disease and that really hurts my feelings. I've been trying to be optimistic, but it's really gotten me down lately. I'm on Paxil, but that doesn't seem to be working. How do you all handle having this disease? I used to be my family's caretaker, but am reduced to laying around barking orders at them. I hate that! I am so afraid that I'm going to have to go in monthly for IV IG or plasmaphoresis - huge fear of needles - in order to just function! Any suggestions?
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