I've just gotten out of the hospital following a surgical j-tube placement...which was supposed to be a 1-d stay---turned into 1 week stay. I am now totally wiped, can't walk, can barely get out of bed...

I called my "new" neuro to get an opinion on what I should do (and reschedule an appoint for testing I had scheduled for Fri), and he was not at all surprised I crashed after what is considered a minor surgery...he said the "it sound's like you have MG". He said that it could take a week or 2 for the neuromusclular blocking agents used during surgery to washout.

This was just totally amazing to me..I went from being totally depressed that , once again I feel like crap and nobody has any idea what to or when/if things would improve, to being optimistic that once the drugs clear my system I should start felling better.

It is amazing how knowing the cause of the problem makes it so much easier to deal with...It still sucks though

Hey there! I was so excited to hear that your new neuro said that it sounds like you have MG! Maybe NOW you can get the treatment you deserve! Does your new doc have a course of action to help you along? I now know why my neuro did 5 days if IV IG right before my operation - that makes sense....I just thought he was being overzealous, but now I'm happy he made me go through it - they even kept my PICC in me over the weekend just so that they wouldn't have to place a new one in me the following Tuesday - my poor hubby had to make sure that the lines stayed clear (saline and heprin) but he was a champ -not for the squeamish! I pray that now you get the help you so desperately need!
Erin

Hey eeyore~ Glad your'e finally home and resting. Please take care and hope that you can get on the right path to treating the MG.


There's no place like home, eh.

Take care and REST!!!!

So happy to hear you are home and in good spirits, even though you don't feel good yet.

That would be wonderful if you could get a correct diagnosis. I know nothing about MG, but hope that you are able to get some good help right away.

Thanks for the update. Sending positive thoughts that you will feel better very soon.