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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-03-2008, 08:40 AM | #1 | ||
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hello everyone. at firs i want to say that i am from Lithuania in Europe, and my english is terible.
i'm 20 years old and i sick miastenia gravis more than 2 years. i want to know more informations about this disease and it would be greate to talk with people who sick. if you want to talk write me in e-mail or skype thanks. |
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09-03-2008, 12:06 PM | #2 | |||
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Hi Miasteniagirl and welcome to this forum!
You may consult this link for some info about Myasthenia Gravis (MG in short). http://neurotalk.psychcentral.com/thread246.html Tell us more about you: symptoms, treatment… Maurice. |
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09-03-2008, 12:40 PM | #3 | |||
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Grand Magnate
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Welcome to NeuroTalk, miasteniagirl!
I tell you what, your English is a whole lot better than my Lithuanian! Good for you! (actually, I don't know a single word in Lithuanian...) I'm sorry I can't help with your condition, but there are plenty of good folks around here who can. Good luck to you, mgirl. Welcome to NT!
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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09-03-2008, 05:54 PM | #4 | |||
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You've found the right place to chat! Everyone here is wonderful and very kind. I too have MG - I was diagnosed March 6 and had surgery to remove my thymus April 22. What medications are you on? What has your doctor said? You are so young to have MG...........how are you doing? Take care and let us all know how you are when you get some time!
Erin
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Erin . |
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09-03-2008, 07:31 PM | #5 | ||
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Junior Member
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Do not feel embarassed by your English. We understand it well enough. I think you will feel comfortable and at home with the people here.
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09-17-2008, 11:55 AM | #6 | |||
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Senior Member
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How are you feeling today? I hope all is well with you! When you get some time, let us all know how you are doing.
Tak care, Erin Hermes
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Erin . |
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10-23-2008, 01:15 PM | #7 | ||
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New Member
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helo,
at the beginning i was feel not so bad, but sometimes when i walk fall down.i havent power in my legs and arms. after 6 month i get the waiter job and the second day i can't to keep the coffee cup in my hands .so i was go to my doctor and she send me to clinic .after 20days doctor say about my disease and i have to use 4x day mestinon. i always thinking about hairdresser profession but my doctor sayd that i cant to do this so i didnt say to her and going to hairdressers course.and about 6 month i was working. in june i was fell werry bad and i cant to work. i cant do nothing for myself. i haven't power at all.i saw double view . one month ago i had tymoma and now feel not so bad thanks for yours answers Egle |
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