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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Senior Member
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Hello all!
Feeling hung over today due to the Benadryl that I HAVE to have b/4 IV IG and was wondering if you had to take it as well................ Benadryl really knocks me out! I cannot stand that feeling! I'm hoping for a reprieve tonight................I just lie around in a daze the next day......weird!!! Erin
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Erin . |
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#2 | ||
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Junior Member
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I think they give everyone Benadryl and Tyleonol prior to IVIG to prevent allergic reactions. You need to just lay low the day after IVIG anyway - it is a lot for your body to adjust to. The most important thing is to drink alot of water the day before IVIG, the day of and the day after - your kidneys will thank you!
Gabe |
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#3 | |||
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Senior Member
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I asked the nurse to please reduce my Benadryl, so I only had half my usual and felt great! No more exhaustion! It was FABULOUS!!!!!!
Thanks! Erin
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Erin . |
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#4 | |||
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Member
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Wow, every time I read about everyones IVIG, I consider myself lucky. I have never had any problems with it, I have only had 4, but still the only problem was with the last one, I had a migrane, but I quite sure that was due to my back being out. I make sure I drink lots the day before and also on the day, as I only now have it for one day, this last one was 69g. Hope things are ok with you Erin.
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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#5 | |||
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Senior Member
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![]() ![]() This one kinda knocked me out, but I just KNOW that I'll be up and around by tomorrow and feel like my old self within the next couple of weeks! ![]() It was so funny, cuz you know how I flip out about PICC lines and Liz, the nurse cam ein to take it out and informed me that this was her forst time! Talk about nervous! My blood pressure went up to 134/70 (it's usually 110/70 or so), but it went great! We "bribed" the nurses all week with food and they were so sweet! I even had the nice room for my 4-6 hr nightly stay! Mike and I are going to send them flowers next week! It has been nice and COOL here (high of 58 today)..........I love it when it's like this!!! I am going to start decorating my home next week for my hubby's yearly x-mas party. I just love how pretty the house looks when it's decorated! I know I'm doing it early, but I figure this will give me time in case I start to feel crappy again! Ah, the Holidays! My favorite time of year! Happy Turkey day all! ![]() ![]()
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Erin . |
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#6 | |||
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Junior Member
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We sure do things different in Canada.
My IVIG's are done in the outpatient part of the hospital during regular 8 am - 4 pm hours. There is a big room and people get various antibiotics, blood, etc. It's like musical chairs in that room some days. Yet, everybody has a story and it's always interesting to chat with them and hear what they have, and their symptoms, and how they were diagnosed and how they try to continue to live normal lives. IVIG is given quite a bit for a variety of different conditions here - and the amounts vary quite a bit as well. Not only based on weight, but depending what you have too. I'm the only MG'er. As far as I've seen with the 20 or 30 different people getting IVIG, only 2 have ever had to have benedryl. Most say they experience 'flu' type symptoms for a couple of days - ie, tired, low energy, etc...sometimes headaches (due to lack of fluids), and then they perk right up. So to hear that you go in for the evening and have your own room.....not up here..... Lydia |
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