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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-05-2006, 06:29 PM | #1 | |||
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Well, my Mom and my Sister are headed home after a looooong 4 day visit. Mind you, I loved having them, but having all of the kids and the grandkids over every day, plus all of the extra driving I had to do when they were here, just about did me in. I just went to Walmart to pick up something I needed, didn't think I'd need one of the electric carts, and boy, did I start to feel it. By the time I was done, I was barely dragging, and had a LOT of pain in my right thigh. That muscle seems to tense up and ache when it gets fatigued. It's also the one that tends to give out when I've overdone it and start to get the rubber leg thing.
Does anyone else experience that muscle tightness and aching in fatigued muscles? Hugs,
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Lois . |
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11-06-2006, 12:14 PM | #2 | |||
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Lois, yes everyday. My chest/breathing muscles ache and I get shortness of breath every morning after about 1 1/2 to 2 hours of being up first thing in the morning. Then I lay down and rest and after 30-60 minutes of rest get another cup of coffee (and Mestinon, 90 mgs, every 3-4 hours like clockwork) and then can do my 30 minutes of exercise. Continuous moderate exercise of 30 minutes seems to make me feel like I have more energy.
I try to grocery shop with my husband. Usually I am only good for a short time and have to go to car and rest. My eyes start aching, I feel off balance, my legs begin dragging, and I hold on to the cart. My neck muscles start giving out and I end up sitting down, but better yet, I try to walk back to car and rest. Also, I become very sensitive to the temperature. I usually feel like I am cold to freezing and like the warm car........... People, (Mom, sister, etc.) sometimes wear me out too. Don't get me wrong, I do love them alot. Sometimes when I drive my mom to the mall I end up having to rest because my legs become weak and my breathing muscles ache. Again I sit on a bench with Mom, put on my sun glasses , close my eyes and rest. Best place is in my car with the seat reclined. My mom is patient and seems to understand. After about 30 to 60 minutes I am okay. I try to limit my outings to 2 hours. Lois sorry to ramble. I am glad to hear people like you experiencing the same symptoms I do. Sorry. You are not alone and neither am I. Take care fellow MGer! |
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11-06-2006, 12:17 PM | #3 | |||
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Lois, yes I do feel that muscle tightness alot in my chest area.........Heat helps somewhat ease the achey/pain feeling...........
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11-06-2006, 09:02 PM | #4 | ||
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Hey Lois,
Glad to hear you had fun with your mom and sister (and the rest of the gang!). My legs feel like that almost every night - like cramps and spasms almost like "growing pains" when I was a little kid. I have to lie down when I get them - and that's not easy at WalMart! I suppose you could go check out their lawn chairs for an hour or so I live in Minneapolis, the home of the Mall of America which I call the H_ll of America because going there is like _ell to me! I have family and friends who come to visit and that's where they want to go...it makes me tired just writing about it. I hope you get some rest. Gabe |
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11-06-2006, 10:17 PM | #5 | |||
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Thanks Cindy and Gabe, for the replies. Misery loves company, I guess, because I appreciated knowing someone else has the same thing. Cindy, I'll have to try your suggestion of heat. My leg is aching something fierce tonight, plus I've got restless legs, and my hands are aching too, something that is unusual for me. I'm trying to think of what I may have been doing to cause extra pain in the hands. I guess it could be carpal tunnel, since that does flare up from time to time. Do you all ever get restless legs?
Hugs,
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Lois . |
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11-06-2006, 11:46 PM | #6 | |||
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Junior Member
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Lois sometimes in the evening when I am resting in the bed I feel I have to stretch my legs, ankles, hands, wrists and neck. As I do this stretching everything cracks and creaks, but it feels good. Again I sometimes apply heat with those pads I put in the microwave for a couple of minutes. I think this might be arthritis. I don't know if it is restless leg.
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11-07-2006, 11:40 PM | #7 | |||
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I'll have to try those heat pads, Cindy. At the moment I'm using a cream that my Mom brought me that heats up. It helps, but makes my leg feel greasy.
Hugs,
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Lois . |
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11-08-2006, 08:19 AM | #8 | |||
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Junior Member
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Good luck Lois. I buy my little heat pads at Rite Aide. I know some people make them with material and fill with rice I believe.
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