Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 10-09-2008, 04:14 PM #1
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Smile Does anyone have the time/inclination to write their MG story?

Hello all! I was hoping that a few of you would be able to write your MG story so I can add it to the MG support group I belong to here in SA.

I realize that we live all over the world, but since so little is actually known about our disease and everyone suffers it in different ways, we can provide information that is truly valuable for others our there who suffer as we do.

I personally found the prospect daunting and really did not want to do it until
I remembered how sick I was when I was finally diagnosed and how many dr's I had to go to to get a proper diagnosis - that is simply unacceptable.

I know there are a lot of sick people out there desperate for answers who would really appreciate any/all input.

I also know it is a lot to ask, but am hoping someone/anyone will agree to do it!

A am also making up some bruchures so when someone comes up to me and asks me about my big scar I can provide a little more insight regarding our disease. Your story doesn't have to long and drawn out - a few paragraghs would be great!

I know all of you are very busy, but if you can spare some time, I'd really love to hear your stories!!!

Take care!
Erin Hermes
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
This is hard to write Roseblue General Mental Health & Emotional Support 16 07-21-2008 02:11 PM
Social Security News: Powerful TV Story On Backlogs (VIDEO Story) Stitcher Parkinson's Disease 1 07-14-2008 10:55 AM
I write to cope befuddled2 Bipolar Disorder 7 06-25-2007 03:26 PM


All times are GMT -5. The time now is 02:23 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.