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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-14-2008, 01:53 PM | #1 | ||
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I was diagnosed with MG almost two years ago after verifying tests came back from Mayo's. I have attempted to maintain a normal lifestyle, working as a Defense Contractor after recent military retirement, attending all my high school kid's sporting events and taking care of our eight acres. I take CellCept and Mestinon daily. The only problems I can't ignore are the weak eyes, fatigue and muscle weakness to the point that for the past few days I have not been able to lift my left arm more than a few inches.
The question I have is how much of the muscle weakness can be attributed to MG and how much is residual from polio I contracted as a 12-year old in 1959? Many of the symptoms of post-polio syndrome and MG seem the same. In 1959 I was hospitalized for a couple of months, undergoing the Sister Kenny treatments, spinal taps and water therapy, muscle stretching and learning how to walk again. I had a year and a half of physical therapy afterwards. After returning home from the hospital, being a farm kid, I continued with normal activities and even played football for a year in high school before enlisting in the Army after convincing the medical folks at the military entrance exam that I could serve successfully after they told me they were rejecting me. I ended up with 41 years of military experience. Since both MG and polio are neurologically related, I wonder if both have a hand in the muscle weakness and neurological sleep apnea I was diagnosed with a few months ago. Does anyone know of people who have had both diseases? |
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10-18-2008, 06:49 PM | #2 | |||
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First off, let me say a big "howdy" and welcome! You will love this site! Everyone here is so wonderful and friendly!
Secondly, your question is intriguing, but probably a neuro would be your best source for info. Since I am only 34, I know very little about Polio - other than it is scary - I have also recently been diagnosed, and know how hard this disease can be emotionally. I hope you hve a good support system. You have already takn a big step and that is finding this site! It has been great for newbies like me! If you want to talk, please respond! Sorry I couldn't be more help! Take care! ERin Quote:
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Erin . |
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