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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-28-2008, 02:09 PM | #1 | |||
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Hello all! Just got back from my neuro. I have feeling really crappy lately and was worried that I'd have to go back for IV IG or the other (yikes).......Anyways, he said that the drop from 20 to 15 affects a lot of people adversely and that he'd like to go ahead and increase my Cellcept to 2000 a day (it was @ 1000) and keep me @ 15 mg of Prednisone for the next week. If I am Ok then GREAT, but if not, then I have to go in for IV IG or the other (my eyelids have been drooping and I've been sleeping A LOT!)........
Please, please keep your fingers crossed for me! Also, please pray for me - I really do not want plasmaphoresis, cuz' then I'd have to stay in the hospital as I can't walk around with a big cath in my jugular! I cannot stand this darn disease! Erin
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"Thanks for this!" says: | Twinkletoes (10-28-2008) |
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