Thanks for all of your input. I definitely need to make an appointment and get in to have some tests done. Things are more back to my normal this week last week I was sick so it just made everything worse.

Hi Syris

I'm glad things are more back to normal.
Yes being sick certainly takes it out of you, I've got to the point where I tend to ignore symptoms of anything, hoping it will go away, cos I'm sick of being sick and then my MG getting worse, you would think after having mg for nearly 6 years I would have learnt

redtail

As Redtail put it:"It seems that our neuros test us differently around the world",
here is a test procedure which is fairly common in France and in Belgium.
I find it interesting because you can test yourself at home with the aid of a relative and because it is quantified, so it enables you to follow the evolution of MG.
I think it is particularly useful in case of generalized MG, as all muscles are tested.
If you have any difficulty with the translation or with the tests themselves, do not hesitate to ask clarification…
Maurice.


QUANTIFIED MUSCULAR SCORE FOR MYASTHENIA

1)Arms stretched horizontally, patient seated: 1 point for each 10 second hold time
150 seconds = 15 points
100 seconds = 10
50 seconds = 5

2)Patient lying flat on his back, legs up and bent at 90 °: 1 point for each 5 seconds
75 seconds = 15 points
50 seconds = 10
25 seconds = 5

3)Flexing capability of the head, patient lying flat on his back
Capable of pushing against a hand applied on the front = 10 points
Not capable of pushing against a hand applied on the front = 5
Flexing not possible = 0

4)Moving from a laid flat position to a seated position
without using the hands = 10 points
not possible = 0

5)Movement of the eyes, patient must follow a finger moved up and down, right and left, at 40 cm from his face
Normal movements for both eyes = 10 points
Normal movements for one eye only or drooping eye-lid on one eye = 5
Double vision or drooping eye lid on both eyes = 0

6)Eye-lid and eye-brow closing
Normal = 10 points
Not full = 5
Not possible = 0

7)Chewing capability
Normal = 10 points
Reduced = 5
Reduced to zero = 0

8)Swallowing capability
Normal = 10 points
Reduced without choking = 5
Reduced with choking = 0

9)Speech
Normal = 10 points
Nasal speech = 5
No speech = 0

Maximum total score = 100 points

Hello all! I went to see my GP today with my list o' symptoms and she thinks I have pneumonia - AUGH!!!!!!!!! I could literally scream!!!!! If it's not one thing, it's another!

I have 3 tooth infections as well (one has invaded my jaw bone) and need to have the teeth removed and implants put in (can anyone say "ka-ching"? More money! More health issues! In fact, my dentist said that if I needed an organ transplant right now, there is no way they'd even consider me due to the huge infection in my mouth! (Thankfully all of my organs are perfect)

I was crying driving home today and then found a note from a truancy officer on my front table (my son has been skipping 1 class) - what a dreadful day!!!!

I tell you, when it rains, it pours! My GP told me to not let this stupid disease drive me crazy, but I am just feeling terrible! Plus, I have a little big that just won't go away......................

I do know it will get better! I do know that it will be OK. I just needed to vent!

Hopefully my neuro will be able to schedule more IV IG or plasma exchange, so I'll be back on track soon - I just hate being stuck @ home, laying around, feeling sorry for myself............I think I'll eat some chocolate and watch an old movie.......maybe cry a little more and then feel better!

Erin

Thanks for that Maurice, alot of these sound familiar, infact the last visit I had to my neuro, we talked about holding arms out in front of you as a test, and he said with a smile on his face "I just think thats cruel", I couldn't believe it, I decided it was nice to be at last, able to joke with my neuro(I didn't think he had a sense of humour!)

Erin, sure does sound like it's pouring at your place, what class was your son skipping?

Chocolate sounds like a good idea, in fact I wouldn't admit it to any one but you, but I had some chocolate biscuits just after my breakfast(not something I normally do, but with all the bad news in my family at the moment, I just needed a bit of a pick me up!)

redtail

Yeah, all of those do sound familiar! My neuro pushes against my head, arms, legs, etc and then makes me push against him. Then he does the eye thing......something my hubby does @ home when I'm weak!

Devon was skipping math. If he skips any more classes, I have to go to court! I'm thinking about pulling him from school and just letting him get his GED, but I'll have to do some serious praying about it first!

He does have a learning disability that really affects his school work and the school doesn't seem to want to acknowledge it............it just makes me so sad for him, but angry as well.........

If we do let him drop out, he has to have a full time job and go to college - I just don't know what else to do!!!!!

Does your cellcept affect your appetite? I don't have one anymore, but am still not losing any weight @ all - AUGH!!!!!!

Erin

Yep if I could have skipped a subject it would have been maths, I really hated it at school! It all sounds very stressfull for you all!

Yep at the moment, I wake up feeling nauseous, force myself to eat breakfast, and around lunchtime make lunch, and by then feel hungry, but afternoons sees me searching for food to eat, which I put down to the pred!

But this isn't unusual for me, when I first started on all my meds I would wake up every morning and be sick, this happened for quite a while, until I saw a different Dr, and he put me on probanthine, which works for me.

Kate

Hey there!

I have been shaky and twitchy all day 2day! I drove the lady that helps me around my home to her home today and my thigh was going nuts!

I have also been shaky all over today - don't know if it's nerves or muscle weakness...........

I wake up shaking like my little chihuahua, though Mestinon or Xanax usualy helps!

How are YOU feeling today? Are you feeling better?

Hang in there!

Erin

Im not diagnosed yet but this is exactly the same for me. The muscles under my eyes twitch and quiver if I hold a smile. Even turning and holding my neck to either side makes my neck muscles shake. If I clench my fist (not overly hard) my hand shakes.

I have what my doc called 'exertion tremor'.

Hello and welcome! You are going to love this site! Eveyone here is so friendly and caring!

This has truly been a blessing for me, cuz' b/4 I found this site, I was so scared all the time, but have found people that KNOW what I'm going through!

I still have the muscle problems - even though I'm on roids' - 20 mgs a day and mestinon (480 mgs a day)..........Before the roids, I couldn't even carry a gallon milk, and EVERYTHING was just too hard!!!!

When do you see your neuro? Are you on any meds? What tests have you taken? How are you feeling today?

If you need to talk, I'd love to hear from you!!!

Hang in there and do not overdo it!

Erin