I'm doing ok. Thanks for the welcome. In the UK you cant just go and see a neuro. You have to get a referal from your GP. My symptoms came on quite suddenly so at the minute my GP doesnt want to refer me. He hopes its a virus. But its not getting any better. First thing I noticed were widespread fasciculations. When this happens you fear ALS.

My GP has no idea what is going on and wants to give it time. I dont agree so Im pushing for a referral.

As for tests. Well I've had the usual stuff - liver, thyroid, white cell, kidneys, sugar, electro balances - all normal. I know something is wrong - I can feel it. As for what I have - no idea. People have suggested to me its MG because of the variability of how I feel and how I feel better after I rest. Have a look at my post and tell me what you think xxx

Sorry I cut the quote to make it shorter...

It was very interesting, and on the face of it I come up quite low on this scoring sytem. BUT I had difficulty in every single area of the test. For example, putting my arms in front of me they start to ache after 10 seconds, after 25 they start to quiver, after 45 the muscles are possitively burning. How far should you push yourself?

I dont know how fast MG develps, but perhaps if I do have MG then its early stages for me.

WOW- I thought it was just me!!!
 

It's been a while since I've been on to check in on everyone-sorry. When I saw this & read you replies, I could not believe it!!! I have had a few bouts of shakiness/ tremor-like experiences. At first, I thought it was a reaction to IVIG, then when I went off prednisone-but I never really got a definitive answer. Anyway, since I have not taken prednisone, I have not had that-thankfully. But it was a scary experience. I even had tremors on my tongue!!!! Anway, I'm sorry that you had that experience, but it is comforting to know that we are not alone.

Nancy Lee

Hello again!
 

Hello Spelbound!

I am not a DR.,but our symptoms are quite similar. I also have had the red eye/conjuctivitis thing and my muscles do shake. I also experience numb limbs and the like. My muscles also get sore after activity and relax after I rest.

MG is such a tricky disease! For me it took a full blown crisis to be diagnosed - that should neer happen. When I was finally tested, I scored positive for every single aspect of MG - across the board. In fact, my surgeon told me he had never seen a more comprehensive diagnosis of MG - EVER - in the 20+ years he has been practicing. Not a good thing!

I think the waiting and worrying were the hardest for me. Certain members of my family said I was making it up or just lazy (in fact, they call it my "lazy bone" disease. Others said it was b/c I smoked, and others said I was depressed. The point I'm laboring to make is that you know your body! You know you are sick and need to get help!

Hang in there and let me know how you are!

:hug:Erin