The guy said to look at another disease... but in googling, I cannot find another reason for choking or swallowing issues that is not muscular... I don't get it.
And now... I have shingles... so feeling rather... awful. What next!

Wow. I don't have any idea of your history or anything. I can only imagine the frustration you're going through. I do know the most frustrating thing for me and my wife was the "not knowing what was going on" stage. Google-ing on your own for symptoms, self-diagnosis, is just a recipe for worry and frustration. My symptoms all pointed to a very nasty cancer with a short life expectancy and didn't mention MG at all with online resources. Until I was diagnosed by my thoracic surgeon I had no idea MG even existed.

Have you had full upper body CAT scans with the contrasting dye injected, MRI, PET scans etc? Have you seen an esophageal expert? Has your primary doctor sent your EMG test results for another opinion?

I hope all works out well for you and you find out what is happening to you soon.

Brian

My CT for the thymus was without contrast so no... some of the abdomen with contrast (I have tons of inflammed lymph nodes there - but I am assured it means nothing - just like they do from my neck to my knees).
No PET scans... I have have tons of MRIs but not lately of the abdomen. Of the head, yes - due to the pit tumor.
I have to find yet another EMG guy... no esophageal guy (they exist! what are they called?)...
My primary care guy is so baffled by me that he ... well, he also gives me less than one minute. I have been searching for someone else that I can actually see that will help and not just give me pain pills (which if I wanted, I would be happy... but I am not).

I have already had one rare, potentially fatal disease. I am so beyond this at this point. My endo even told me I cannot have another rare disease. Like I choose this?

I'm not sure what esophageal specialists are called to be honest (possibly Gastroenterologist?), I was scheduled to meet with our local one when we were first trying to figure out what was going on with me and they just called him the esophageal specialist when talking to me about him. If your primary care guy is not looking after you, I think you're right to be looking for a new one. That's really hard to do where I live, good luck with that.

Heh... When I was given my diagnosis, my wife and I both declared "much better than the alternatives, I choose this one" Of course, I'd prefer not to have any health issues.

I have a gastro guy and an ENT so maybe I will give them a call... I am just so tired of seeing doctors at this point.
I have a couple of recommendations for PCPs so I will search them out, poor things.
I too, would prefer health. I thought after my adrenals were out that all I would have to do is manage that... no idea I had another hidden disease. Off for the medical mystery tour...

Best of luck; I hope you find your answers soon.

Just wanted to let you know that I am thinking about you and praying for you!

You are truly brave! I am so sorry you are having to go through this! I wish there was something I could do or say to help, but I know there isn't.

Any time you want to talk, I am HERE for you!!!

Erin