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Old 11-14-2008, 05:07 PM #1
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Default Bone density test

Hello all! MY GP wants me to have a bone density test in a few weeks.......is that the "norm"?

I know that 'roids rob us of vitamin d, etc, but have your docs suggested a test for you?

I've only been on steriods for 7 months now, so I can't imagine that any real "harm" has been done - plus I take 1800 mgs of calcium w/vitamin d daily (per my hema)................

Do any of you crave WHOLE milk or OJ wit lots of pulp? I go through it like water!

Any input would be appreciated!

Erin
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Old 11-14-2008, 06:52 PM #2
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Yep Erin I've had 2 since I've been diagnosed.

The last one I had was good because they recommended a daily calcium intake to keep my bones happy and healthy while I am on pred.

Yes I do go thru stages of craving milk, and don't like the low fat stuff, and I can't eat oranges as they have bad effects on my, but ate a couple a few weeks ago, cos I was just hugely craving them?!?! wierd. Maybe they contain potassium, and I know I'm low in that, and I take tablets but still crave other things that contain potassium.
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Old 11-15-2008, 05:19 AM #3
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Hi Erin,
Yes, steroids cause osteoporosis and although a high calcium diet is strongly recommended, it is advisable to monitor bone density, I had my first check (as a reference) at the beginning 14 months ago and I will have the second one next January.
Be carefull with biphosphonate supplements frequently prescribed as they are reported to cause jaw bone necrosis…Dentists should be informed of their intake!
Maurice.
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Old 11-15-2008, 06:21 AM #4
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I haven't had a bone density test and I've been on steriods for almost exactly a year now. Should I ask about this when I go see my new neuro or my GP? I don't want to put anyone out or look like I'm questioning their professional judgement.

I've been taking 800mg of calcium, no vitamin D and 50 mg for potassium. Those are just my supplements - obviously I get more nutrients from my food - I try to eat pretty healthy. Lots of fruit and veg. I didn't drink a lot of milk as a child.

Erin, I do crave juice but not milk (I'm still not a milk person).

Take care!
~Kathy
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Old 11-15-2008, 12:10 PM #5
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Yes indeed Scots Kat, I think you should ask for a bone density test, it is not questioning your GP's capacities but as I said, to have a reference to compare to later…(18 to 24 months between the first and the second).
You should also take a brand of calcium supplement which includes vitamin D because this vitamine facilitates the absorption of calcium.
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Old 11-15-2008, 04:14 PM #6
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Default Hello Maurice!

Maurice,
I hate to sound ignorant, but what exactly does jaw bone necrosis? It sounds awful - whatever it is!!!

Thank you!
Erin
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Originally Posted by neutro View Post
Hi Erin,
Yes, steroids cause osteoporosis and although a high calcium diet is strongly recommended, it is advisable to monitor bone density, I had my first check (as a reference) at the beginning 14 months ago and I will have the second one next January.
Be carefull with biphosphonate supplements frequently prescribed as they are reported to cause jaw bone necrosis…Dentists should be informed of their intake!
Maurice.
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Old 11-15-2008, 07:20 PM #7
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Erin, you may see this for info on jawbone necrosis:
http://www.yourlegalguide.com/onj/
Anyhow (Halloween is over) good night…
Maurice.
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