FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
12-07-2008, 03:15 PM | #11 | |||
|
||||
Senior Member
|
My eye pain is a throbbing, hurts down to the bone, makes me stay up and cry kind of pain. I also experience watery eyes and lots of pressure. I just had a complete chest/sinus x-ray and my results were normal.
I think my steroids are the culprit, b/c I have had migraines all of my life, but have never had pain like that b/4. In fact, the night b/4 my trip I was up till 4:00 with pain that just would not go away. I finally had to take 2 pain pills in order to get some relief. When I start to have pain like that it always scares me. I was going to have my hubby take me to the emergency room if the pills didn't help. I'm going back in for more testing ASAP for glaucoma, cuz' my eye pressure has gone up 10 points since I started on the roids'............. Not a good sign! Take care! Erin
__________________
Erin . |
|||
Reply With Quote |
12-07-2008, 05:06 PM | #12 | |||
|
||||
Member
|
Erin,
The pressure of one of my eyes went up to 32, the other to 28 and they are now both back to 16/18. I take eye drops twice a day (mornings and evenings), I will see after the next eye test whether the anomalies in the vision field still persist. I hope you'll see your ophtalmologist pretty soon. Maurice. |
|||
Reply With Quote |
12-28-2008, 12:29 AM | #13 | ||
|
|||
New Member
|
My daughter Leah (age 8, severe ocular symptoms) complains that her eyes hurt a lot. The docs tell me it's not part of the MG but we know it is. She never ever had that pain until the MG started, and she got a clean bill of health from the opthalmologist and optometrist.
Pat |
||
Reply With Quote |
12-28-2008, 01:28 AM | #14 | |||
|
||||
Legendary
|
Hi Pat, welcome to neuroTalk.
I'm so very sorry that your daughter is suffering from eye pain. I don't have MG.... I have MS, and my worst symptom is eye pain. I take an anti epileptic medication which helps some, and if your daughter's eye pain is due to nerve pain like mine is, maybe something similar might help. I do hope she gets relief soon. Hugs to your daughter.
__________________
Eastern Australian Daylight Savings Time and my temperature . |
|||
Reply With Quote |
12-28-2008, 10:00 AM | #15 | ||
|
|||
Junior Member
|
My eyes hurt a lot in the morning. It's because my lids do not close tightly at night and my corneas become dry. This could be little Leah's problem as well. You could try a lubricating ointment at night (sold over the counter) and see if she feels better.
Missy |
||
Reply With Quote |
12-31-2008, 04:24 PM | #16 | |||
|
||||
Member
|
My left eye aches so bad.....they both get "blurry" and I have to blink alot...the ache seems to stop after I take my mestinon dose..but it only returns a few hours later...when next dose is due...
The blurred vision remains...a constant annoynance... |
|||
Reply With Quote |
12-31-2008, 05:17 PM | #17 | |||
|
||||
Senior Member
|
Yep! Welcome to the club! MY eyes give me major grief - especially right b/4 I have to go back for IV IG...........that's when my neuro decides I need to go back to the hospital - AUGH!!!!!!!
Are you on any other meds? Mestinon is great stuff, but only when you take it with food, otherwise it tears my stomach up! Unfortunately (for me), Mestinon wasn't enough and that's why I had to take the roids......... How are you doing? Are you feeling better? Hang in there and try and take it easy! Try and gets lots of rest.......... easier said than done, I know Erin
__________________
Erin . |
|||
Reply With Quote |
12-31-2008, 05:21 PM | #18 | |||
|
||||
Senior Member
|
Hey there! Sorry to hear your little girl isn't feeling well........Hopefully she'll feel better really soon!!!!!
When my eyes hurt like that, it's b/c my eye muscles are so weak that they start "swimming" around in my head.......not comfortable @ all!!!! Once I have my IV IG or the other, my eyes go right back to normal, so you may want to talk to your neuro about that.......Not fun, but it really helps! Give your dd a big hug for me! She's waaaaaay too young to have to deal with all of this! Erin Quote:
__________________
Erin . |
|||
Reply With Quote |
01-01-2009, 07:59 AM | #19 | ||
|
|||
New Member
|
Quote:
|
||
Reply With Quote |
"Thanks for this!" says: | erinhermes (01-02-2009) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Pain Numeric Rating Scale May Be Only Moderately Accurate for Pain Screening CME/CE | Chronic Pain | |||
Pain Numeric Rating Scale May Be Only Moderately Accurate for Pain Screening CME/CE | Spinal Disorders & Back Pain | |||
difference between nerve pain/muscle pain? | Spinal Disorders & Back Pain | |||
Gene Variation affects pain sensitivity and risk of chronic pain - NIH press release | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Gene Variation affects pain sensitivity and risk of chronic pain - NIH press release | Chronic Pain |