Hi Erin,
US$10,000 for a 400 ml bottle which costs a mere US$1,300 over here, I can't believe it!
I' m well stabilized since several months, with only that leg weakness which limits my walking autonomy to approximately 1 hour on flat grounds, just enough for the weekly shopping with my wife…but curiously enough, it doesn' effect my swimming capacities which are at the same level as "before" .We have an outside swimming pool, but it is now a bit too cold to benefit from it!
Due to the steroid side effects, I will have to have eye surgery for cataract next January. I postponed it because the "canadians" (our son, his wife and 3 children) from Montreal will be here for Christmas and New Year.
I' m tapering the steroids each month, presently 20 mg/d, 17 mg next month, then 15…
Good luck with your IVIG's and PICC line…
How long does their efffect last?
Maurice.