Hello again!

When you have some time and the inclination, I'd love to hear your story.

As you know, we all have different symptoms, problems, etc. and I would love to hear what's been going on with you!!!!

Hang in there and take care!!!

Have a wonderful Thanksgiving!

Erin

I also had the thymectomy. I had it last year and have not yet began to reep its benefits. After my first IVIG treatment at the Durham VA medical center, my MG went into remission and stayed that way until 2009. This is my first attempt at reaching out to other with my illness for treatment advice. I just want to live a somewhat normal life. Before I read a lot of the post, i thought I was the only one in the world with this illness. I was once active and now everyday i try to muster enough strength to go to work. If anyone has any advice, please share. Thanks. Forever Blessed.

Just wanted to welcome you to the forum - there are so many awesome people here! You are going to love it!

I was scared until I found this site and all of the wonderful people on it - trust me - if you decide to join you will have one HECK of a support system!

IT WILL GET BETTER!

Erin

Been away from this site for a spell, like those have said many times this disease is a roller coaster ride so I have enjoyed the good days and rode out the bad ones!
My Neuro has suggested 3 or 4 times to consider a thymectomy - I have no tumor nor enlargement - but his view is many have amazing results. I am 55 and still working, have been able to get by on 3x60 mestinons a day - but of late I have had more trouble than I would like.
So, I see several reply's to the OP but most that have had it done have not really shared the results?
So, how about hearing some comments to help make a decision? From what I can tell its just a roll of the dice?
Great site and nice to have "friends" that can relate!
Randy

I had great results, but I had a thymoma that needed to be removed too. As I understand the roll of the dice is all down to whether or not the thymus is hyperplastic (supposedly this can be determined by an MRI.)

Much appreciated Brennan,
I found a website called CTSNET - the results were pretty promising and it really detailed the surgery...
I have bad discs in my low and middle back and base of neck that give me fits - my theory is the muscle weakness from MG is making the discs even worse by allowing my frame to put more pressure on them. So, I have to decide do I risk surgery for say my neck which is worst or go for the thymectomy and hope the muscle strength improves a lot and I may not need that surgery as well!
Unfortunately pinched nerves from herniated discs can also cause muscle weakness or impairment that may mimic some of the MG symptoms. Kinda the chicken or the egg delima!