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Old 11-15-2006, 06:52 PM #1
Angie B Angie B is offline
Junior Member
 
Join Date: Nov 2006
Location: Minnesota
Posts: 14
15 yr Member
Angie B Angie B is offline
Junior Member
 
Join Date: Nov 2006
Location: Minnesota
Posts: 14
15 yr Member
Question Reboot

Hi. Im new to this forum but I have found all the threads very informative. I was diagnosed with MG 3 years ago and have had all the conventional treatments (Mestinon, Prednisone, IVIG, Pheresis, Thymectomy). These have worked fairly well and although I have not had a consistant time period of feeling great. The MG seems to affect my eye, swallowing and lungs primarily. In Sept I had a flare that put me on a ventilator for a week. That being said, I have been doing a lot of research on some more aggresive therapies for MG for those that do not respond to standard protocal. There are many studies that have been done on "rebooting" the immune system through chemotherapy and partial Bone Marrow Transplants. Anyone have any information or experience with that? I am 38 have 3 kids under 10 and am looking for an agressive treatment or even a cure. John's Hopkins has incredible data with very promising results using the "reboot". Any thoughts? Thanks.
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