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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-04-2009, 11:35 PM | #11 | |||
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I am so happy ro hear you are feeling better! Mestinon is pretty good stuff!
Is there any way you can get a little time off to regroup and get your symptoms under control? I'm going to try and call my neuro 2morrow - feeling like crap again! Wonky eye (eye goes off kilter and hurts) and really weak, but you take the good with the bad.......Hopefully he'll just bump up my steroids! I'll take sideburns and weight gain in order to feel better!!!!! Take care! Erin Quote:
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01-07-2009, 11:46 PM | #12 | |||
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I finally saw the neuro today....I felt so disappointed....He added additional mestinon...timespan for nighttime...in addition to the 90mg three times a day....he then, told me that I was depressed and changed my celexa 20mg to Cymbalta 60mg....I guess I am feeling that he thinks all of this is in my head....
I know what I am feeling...the blurry vision, slurred speech and difficulty forming my words at times....falling and stumbling....and being so tired....and then...to have the doc asked me if I felt like harming myself....NO, my body is causing me harm...not me! That thought never has crossed my mind.. I am so confused! |
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01-08-2009, 06:02 AM | #13 | |||
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Hi Cricket
Wouldn't anyone feel the same as you do when dealing with their bodys going wrong first oops speech oops falling oops eyes that is going to mess anyone thats normal would you of felt the same if you had got the warning from your Dr and Neuro !!!!!!!!!!!!!!!!!!!!!!!!! you will soon get stronger with the med's and you come first not work thats also hard to deal with confused is part of mg but that soon pasess Alan |
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"Thanks for this!" says: | cricket001 (01-08-2009) |
01-08-2009, 01:02 PM | #14 | ||
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Hey Erin,
Luckily, I have not had to deal w/ depression. Although I have had some episodes-for sure! Just keep taking care of you. You are strong & have an insight into yourself, which is essential!!!! You Go Girl! Nancy Lee Quote:
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"Thanks for this!" says: | erinhermes (01-08-2009) |
01-08-2009, 03:54 PM | #15 | |||
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I am going to get out of this funk....take all meds as prescribed...as get to feeling better... I took the day off from work today..just to rest....still in my PJ's now. I can do this!! |
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01-08-2009, 05:25 PM | #16 | |||
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Hey Cricket
Thats funni you know if you can keep that humor your going to feel much better and we all need that time out great you took time off work for yourself Alan |
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01-08-2009, 07:40 PM | #17 | |||
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Hi Cricket! I have those days where I just eat chocolate, watch old movies and stay in my jammies - I call them my "mental health" days!!!!!
They make all the difference in the world!!! You'll feel better soon!!!!! Erin
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01-10-2009, 10:53 AM | #18 | ||
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Mmmmm, chocolate and PJs -nothing better! I've been lucky and not really suffered from any diagnosed depression. I've never been on meds for it or anything. However, that being said - when I was very poorly last year I cried every day during December and January. I didn't think about self-harm but I did imagine that things would have been a lot easier for my husband if I wasn't such a burden (obviously HE didn't think that or make me feel that way, it was just my perception). Since i regained my independence I also regained my positive attitude. Of course I still have days, but no more than a normal person. In fact at school fellow teachers often comment on the fact that i am far too happy for my own good!
January and February are notoriously tough months for mental health - we'll just have to stick it out together! Hugs to everyone! Kathy |
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01-11-2009, 07:10 PM | #19 | |||
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I have been so lazy this weekend! I have not even left the house...But I feel better..I hope it lasts because I have a very busy week coming up at work!!
Stephanie |
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01-11-2009, 09:42 PM | #20 | |||
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I bet you have a fabulous week!!!!! I feel great too, cuz' I just got through with my week long plasma exchange - what a difference!!!
Try and get lots of rest after work and let meknow if there is anything I can do to help! Can't wait to hear from you!! Erin
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