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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-04-2009, 03:22 AM | #1 | |||
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Yep I'm on anti depressants, and happy. Without them I tend to not be at all...............
I know that before mg I suffered from some depression, but its certainly worse now I have MG, loss of being able to do things etc. I'm glad I have a Dr that was attuned to depression, he suggested I start on them again.
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01-04-2009, 11:59 AM | #2 | |||
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Paxil (10 mgs) has been great stuff for me! I know I need it and my neuro keeps making sure I'm taking it!!!!
I just don't think that without them I would be as happy.......my dad has been so bitter since his stroke and I am so scared that I will end up the same way! He met my neuro the other day and my neuro suggested that he see a therapist.......not a good meeting @ all! I think he ticked off my doc b/c he was making a scene and yelled @ everyone...........AWFUL!!!!!! ERin Quote:
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01-04-2009, 03:13 PM | #3 | |||
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My family doc just recently put me on celexa 20 mg. I like it so far..been on it about 3 months. It does mellow me out and I am not so anxious anymore...
I have heard that in MG gravis patients--that we have to be careful with some drugs because of how we absorb some meds??? Like wine...can affect us funny??? I take ambien at night when I can't sleep...has anyone else taken this and have MG..is this ok?? My family doc also gave me this...but my neuro has never mentioned anything about the other meds that I take.... I see him (my neuro) wednesday!! I so am ready to get to feeling better!! |
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01-04-2009, 11:23 PM | #4 | |||
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Hi Cricket!
I do know that certain antibiotics can really mess us up, so my GP is really careful with those....... As for the sleeping pills, I haven't taken one in a while, but I do take xanax and my neuro approves. Right now I'm taking approx. 20 pills (including pain meds for my abcesses) and all of my docs approve...... Hope this helps a bit! Hopefully Missy will get on here and let you know - she has been dealing with MG for a while now and really knows her stuff! How are you feeling? Any better? i'd love to hear from you when you have time!!!! Erin Quote:
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01-04-2009, 11:31 PM | #5 | |||
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I am feeling better being back on the mestinon...but my eyes are really blurring up and my speech is still the same, especially at night...I haven't fallen again since restarting the mestinon..I do stumble..but NO falls ...I have really been taking it easy and resting...I went to work just one day last week..and was really tired...I have a full week coming up...so I am really dreading that.
Unfortunately, I also learned that I do not have any real active support groups in my area...they are in-place..just not really active...maybe meet once or twice a year... I am so glad that I found this site!!!! |
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01-04-2009, 11:35 PM | #6 | |||
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I am so happy ro hear you are feeling better! Mestinon is pretty good stuff!
Is there any way you can get a little time off to regroup and get your symptoms under control? I'm going to try and call my neuro 2morrow - feeling like crap again! Wonky eye (eye goes off kilter and hurts) and really weak, but you take the good with the bad.......Hopefully he'll just bump up my steroids! I'll take sideburns and weight gain in order to feel better!!!!! Take care! Erin Quote:
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01-07-2009, 11:46 PM | #7 | |||
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I finally saw the neuro today....I felt so disappointed....He added additional mestinon...timespan for nighttime...in addition to the 90mg three times a day....he then, told me that I was depressed and changed my celexa 20mg to Cymbalta 60mg....I guess I am feeling that he thinks all of this is in my head....
I know what I am feeling...the blurry vision, slurred speech and difficulty forming my words at times....falling and stumbling....and being so tired....and then...to have the doc asked me if I felt like harming myself....NO, my body is causing me harm...not me! That thought never has crossed my mind.. I am so confused! |
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