I was on Imuran for quite a while with good results. Waaaaay better with the side effects than the Prednisone.

Alas....it was too good to be true....eventually I became too anemic on my dosage......

Just keep on top of your regular bloodwork - there are a LOT of secrets in that red gold that we have.



Lydia

Were you on the ferrous sulfate while you were on the Imuran? Apparently, I was so anemic that I needed a blood transfusion and my ferritin level was @ 10 @ ONE POINT........

I still take the ferrous sulfate now - 2 a day - and am going to need blood work every week for the next couple of months - yuck!!!!

I am really hoping this will work - my body is already starting to swell a lot and my hands and feet hurt like hell!!!!

I hate the fact that I'm back up to 60, but know it will all work out in the long run........

How are YOU? Are you feeling well? How is your family?

Take care!
ERin

Hi Erin - Sorry it has taken me so long to respond. I do not know why CellCept isn't working. Guess it doesn't for everyone. I am off Prednisone - usually wind up back on it when it gets hot and humid - I can't imagine living in Texas - I would be taking it all of the time - I guess that is an advatage to living in the frozen wasteland of Minnesota. I get IViG every three weeks and that is what keeps me going. I don't need it quite as often in the Winter which I am quite happy about. I have way more energy and can do a lot more when it is cold.

How are things going for you?
Gabrielle

Hey there! I was so glad to hear from you!!!!! Yep, Texas is miserable hot - but I"ve been here my entire life and really, really love it!

My hubby is from Chicago, but he loves it here, too! The people are very friendly...........


I am so happy to hear you are off the prednisone! Awful stuff! I have a serious love/hate relationship with it - love how I feel on it - tons of energy overall - hate the side effects - swelling all over!!!!!

The Texas heat can be unbearable @ times..........

I hope the Imuran works.......I would really love to be able to get off the pred here soon!

The last plasma exchange wasn't too bad - 5 days - so hopefully it will be a much better year!!!!!

Take care!
Erin

I love the cold, too! Keep my house like a meat locker! It is the only was to get relief from my symptoms!