FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
|
01-09-2009, 10:06 PM | #1 | |||
|
||||
Senior Member
|
Hey there! IV IG makes me feel amazing! After my last big dose, I was able to decorate my home for xmas, go on a cruise and host a business party for my hubby...........I felt like normal! The results usually last me about 3-4 weeks, during which I am so happy!
I am now in for the plasma exchange - not as pleasant, but longer lasting effects for me - last time I had it was July 31. Much more invasive, but I am finally starting to feel the effects after only 3 treatments...... Some people have kind of funny responses to IV IG - they just don't tolerate it as well, while others breeze through it - no problem! I know what you mean about being worried. When I first had my thymectomy, I couldn't be alone @ all....It was miserable! After talking with my GP and neuro I started taking Paxil - it was wonderful! You may want to ask your docs about it and see what they think...... I don't know about the blood work - cuz' mine was @ 600 when I was admitted!!!! It does get better! It really does!!!! Erin Quote:
__________________
Erin . |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
More Good News (Tinged with some sad news) | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Good news/too good to be true | Parkinson's Disease | |||
Good news/bad news kinda thing | Peripheral Neuropathy | |||
Anyone have any accomplishments or good news? Bad news? | Bipolar Disorder |