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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Senior Member
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Hello all! Just got back from the Methodist today! 5 plasma exchanges later and I am feeling pretty darn good!
THe line placement was kind of a drag, cuz' there was a lot of scar tissue from the one back in July, so he had to kind of yank it, but once it was in, it was smooth sailing all the way! ![]() I'm back @ 60 mgs a day of pred and 150 mgs of Imuran - I see my neuro in 2 weeks for my follow up - hopefully he'll reduce my roids then - my face had just gone down and my sideburns had just gone away....... ![]() I hope all of you are doing great! I have missed you all!!!! 09 is going to be a great year!!!!! ![]() ![]()
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Erin . |
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#2 | |||
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Glad to hear it went ok! Hope the 'roids treat you ok...
I get to go for esophagael tests... they are going to stick a camera down my nose and watch me swallow, no anesthesia... does that sound like fun or what!!! I have not made the appointment yet... I wonder why...
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Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis? |
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#3 | |||
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Hey there! I had that stupid test and you are right - no fun @ all......of course the genius that did the test told me there was nothing wrong with my swallowing and the next month I was in the ICU, so don't believe them if they tell you its all OK.............
![]() Doctors, what a joke! Most of them don;t have a frickin clue!!!! Are you feeling any better? ![]() ![]() Quote:
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Erin . |
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#4 | ||
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Hi Erin,
Glad to hear you are home and feeling okay. I'm sure you'll be able to reduce your steroids soon - I laughed about your side-burn comment! I know exactly what you mean! Take care of yourself. ~Kathy Quote:
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#5 | |||
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ELVIShermes!!!
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Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis? |
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#6 | ||
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Yappiest Elder Member
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"Thanks for this!" says: | rumpled (01-14-2009) |
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#7 | |||
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Senior Member
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Where did you get that icon? THat was so funny!!!!
![]() Erin
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Erin . |
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#8 | ||
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Yappiest Elder Member
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"Thanks for this!" says: | erinhermes (01-13-2009), rumpled (01-14-2009) |
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#9 | |||
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Senior Member
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LOL! That was great!!!!!! I'm gonna have my face waxed weekly to keep the little buggers @ bay!!!!
![]() Erin
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Erin . |
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#10 | |||
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Senior Member
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You know, I have a great feelig about 09! Of course, it could be the roids talking, but I really do!!!!!
I see Dr. I in 2 weeks, so we'll see what he wants to do........ It is going to be GREAT!!!!!! Hugs! Erin
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Erin . |
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