Hi this last week i have been getting problems with my hands all of a suden the hand and fingers become locked or frozen were i am unable to move them
but by rubing them i get the feeling back
i'm guessing that must be MG
If it is does that mean that it travels around in the body
Alan

Sorry, but that doesn't sound at all like MG.

Good luck.

Missy

Hi Alan! I had the same problem for over a year b/4 I was diagnosed......my GP and neuro did tell me it was part of the MG..............sux, I know!

What I am concerned about is that you keep having problem after problem, just like I did, and meds haven't done much to help thus far......maybe you need more meds? IV IG? Plasma exchange? You need to "jump start" your body before you get weaker.......

I am not trying to be a downer - I don't want anything to happen to you.......if you get too weak, then you MAY (only MAY) have a crisis......not fun!!!!!

My hands still stiffen up after a while @ the computer. I just rest them for a while and then they are fine...........

You may want to bring a list of your "new" symptoms to your doc and tell him your concerns - after all, he/she is PAID to take care of you and above all, LISTEN to you! MY GP told me that onnce she saw my symptoms in black and white, she knew what I had -that minute - but wanted to do some scans to rule out MS..........

Just tell him/her that you are getting weaker, not stronger, and the meds are not helping right now.......hopefully he/she will listen and respect you.....if not, find a new one! Granted, me neuro is really OCD with my stuff, but he does know that when I say I feel weak, I feel WEAK, so I have to go in and get an oil change or the like............

Above all; try and stay hydrated! I know you choked on water the other day, so try eating ice chips......keep them on hand all the time! If you are too weak to swallow - do not wait! Go in IMMEDIATELY! I had tons of spots on my lungs from aspirating liquids (or so the "experts" say for now - will know more later)......I was too weak to even chew ice or swallow right b/4 I had to go into the ICU.....too sick @ that point to do anything!

I have pretty "classic" MG symptoms - you sound like you have the same thing.........

I will be thinking about you and praying for you!

Seriously though, please do not wait if you are too weak to swallow!IT is not something you can "work through"............

Erin

I know my friend redtail has the same prob - so do a few other friends here in SA...........

Hi Erin
Thanks i'm seeing my Dr in 10 days time then my Neuro8 days after that
but i need to wait till the pred's really kick in................I'm being careful with my breathing i know what not to do. I have'nt had problems with eating just drinks tho the coughing is strange the Dr said i still have some gaging reflects on one side he also is going to speak to my Neuro
With MG stress can make it worse so i'm thinking that explains maybe why all of a sudden its taking off !!!!!!!!!!!!!!!!!!
my hand becomes paralyzed including the fingers but that is'nt to bad as they do get back with rubing .
theirs such a lot of different efects with MG and just when you think your coping well it decides to slap you Alan

Hi Alan,
I too used to experience this quite a bit - especially in the cold winters of Nova Scotia. It doesn't seem so bad now in Scotland. It's almost a numbness that prevents movement to me ( I know everyone explains it differently). It also affects me when typing for long periods of time (writing papers in university was a killer), knitting, cross-stitch and once or twice (when I was at my worst) writing on the chalk board at school. Most recently I experienced it when I was trying archery - it was a bitterly cold, rainy Scottish day and I had to keep my hands out to hold the bow. By the time my lesson was done I couldn't hold ANYTHING. I went in for a hot cup of tea and just about dropped it. Not one of my more obvious symptoms but there nonetheless. I guess it probably has something to do with the fine motor muscles in my fingers and hands?!? Hope you get your meds sorted soon - it must be very frustrating for you!
~Kathy

MG does slap you when you think you've got it figured out! I hate it!

How long have you been on the pred? Just try and be really careful!

I have a love/hate raltionship with Pred........love the way it makes me feel/hate the side effects, but need it for now, so it will get better!

Feeling HUGE today! Missygirl told me to take potassium pills, so I bought those and hope to feel less like a whale very soon!

Are you OK? How is your family? It is hot here again - wish I was in merry ol' England..........

Hugs!
Erin

Alan,
Yes, I experience that hand and finger problem from time to time, usually in the afternoon when it happens. I haven't been able to relate that phenomenon to anything particular.
Erin,
Watch out for potassium excess, I think the normal values for potassium in the blood are between 3.5 and 5.1 mmol/l.
Potassium in excess can also give probems…you should ask you neuro and request some blood tests…aoutch!
Maurice.

Its good to know that some of you have had it and its just a minor problem
the big worry for me is if my legs get it and become weak i may not be able to climb stairs and strugle when trying to stand but once up i can walk and that makes me feel real good inside
I would like to say that i have'nt become that much weaker just that all of a sudden more symptms are apearing but i'am going to write them all down
if ever i thought my health was in danger i would act , not that i beleive that my MG will its only been a week on preds OH what's also scary is the pos' side efect of preds'
staying positive Alan

The last time I was in the hospital,ummm 2 weeks ago my nurse told me ivig
was used a great deal for people with PN I have had some of the same systems as your's she said it's so interesting how people we are giving
people with MG it's getting to be a bigger group and seems to be helpng more.
I'm glad I broke down and kistened to my Neouro and many dear people in the PN group,if your blessed with no side effects ask your Neuro. I am sorry
I don't know your hard times but I truly wish you the best.It sure has made my life so much better. My wound Dr. who is very much like House
cane and all on tv. yelled down the hall, Sue what's going on you look well
HAPPY beleif me a pain feel min. can be a wonderful start.yep just a min.
I wish for you this happy feeling and more then 1 min. Bless you all Sue