The last week has been really bad, I can barely ready as my vision is almost always doubled. I have a consult tomorrow with a surgeon to discuss the thymectomy but I don't know how I can deal with this vision. I can't read, I cant watch TV, I cant drive. Its not even the eyelid, its just the vision. My hands have even been really good this week, and I am a computer programmer so I use my hands typing all day. This sucks, any ideas what I should be doing? 90mg Mestanon every 4 hours, 20mg prednisone every other day, and 180 Mestanon at bed time and its almost always double vision this week!!

Regards,

John

Sounds like you need more meds. THe pred sux, but it really helped my vision.........

Hope you get some good news tomorrow!

Hang in there!

Erin

Hi John,

I remember when I had double vision constantly for almost 2 weeks, before I was diagnosed. It really is very hard to live a normal life with dv.

It sounds like you need to speak to your neuro, (or other specialist you see), as double vision usually leads to other weaknesses rearing their ugly heads.

I hope all goes well with your surgeons appointment, and with sorting out your double vision.
take care
redtail

Hi John,

I agree with Erin - the pred was about the only thing that has helped my double vision. I'm at 40 mg every other day and my neuro won't let me reduce any further for the foreseeable future. I found that I sometimes get some relief if I put a cold cloth or compress over my eyes. It seems to help relax the muscles and then I can focus more easily. I don't think there is any scientific proof for that, but it helps me on occasion so you might want to give it a go! Good luck - double vision is NOT fun!

~Kathy
(enjoying a snow day off school, but sad because her trip was cancelled for tomorrow due to the bad weather - hopefully leaving on Wednesday).

Everything is very new to me. I am just reading your experiences, trying to understand what is happening to you, and what MG is all about.

Does anyone notice that watching TV seems to trigger a vision problem? Just wondering what your experience is with that.

Thanks alot, and best wishes to each of you.

Hello all! Just got home a while ago......I am tired!

The PICC guy showed me how/why it is so hard to get to my veins...they start out beautiful and round and die after about 2 in.......yuck!

However, he was able to get the line in under 10 min - talk about a miracle!

Mike was there with me all day. The best part is that we are still ablw to drop Devon off @ school and then head for the hospital.......I should be home b/4 my son gets home.

The guy joked with me about always being sick - he said the CDC should be on the lookout for me! LOL!

I'm gonna go for tonight and drink lots of fluids!

I hope all of you are doing well! I miss all of you!

Erin

Hi Kellymg,

when I was having problems with double vision, if I was watching tv, and didn't have it at that moment, after sitting watching tv for a while it would start up.
I would end up watching with one eye covered up, it was very frustrating.
Hope this helps a little.
take care
redtail

That does help, thank you, redtail.

I am not sure what anyof the weird symptoms mean, so it help alot when you tell me it happened to you, too.

I just usually find myself questioning what is happening, or if I am even really experiencing something to begin with. I am over 40 now, and they say the eyes get wonky...

I noticed I have been putting my hand over one eye to watch late at night. I usually just hurry up and turn off the TV so I can just ignore it!

Thanks for sharing. I appreciate it.

Like many of us Double vision effected me first mine has always been their they say seeing is believing but when a car passes you once and then again thats scary ........................
if the weak eye is working hard then its going to get tired
mine got really bad when i went on Pred's but has settled back
it is always good to know others are able to reassure you its certainly has me Alan

When it was really bad, I couldn't watch TV, drive, anything. I did notice that putting a bag of ice on my eyes seemed to help. In fact, my neuro had me put a can of soda on my eyes to check for MG.

It is hard, but the sooner you get your diagnosis and meds right, the sooner you will feel better.


Don't give up and don't ignore your symptoms. There is a lot that can be done for MG now!

Erin