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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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02-11-2009, 04:48 PM | #11 | |||
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Wow! You walk for 30 mins? I think I would pass out! Truly!
I park my car far away from my office and that is the only real exercise I get right now.....though I am thinking about getting on my treadmill later on today....... How are you feeling? Are you OK? What is going on with the fires? Are you safe? I know it's got to be hot there - are you taking potassium? Are you swollen? I am a whale! My pig face has come back! Eyes are like slits in my head........I don't even recognize the face in the mirror and I have family coming down this weekend...........for karaoke no less! I'm gonna stay home 2morrow and ice my face down all day and pray that it goes down by Friday.......... Please let me know that you and your family is OK.......I worry about you! And I still pray for you all the time! Erin Quote:
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02-11-2009, 08:40 PM | #12 | |||
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Hi Erin,
I think I'm paying for my walking, I had a huge migrane last night, and today, my mg is not too good. The fires are on the other side of the country from me, but it still makes me cry!!! Today is hottish, and humid ICK!!! I'm taking pottasium, have been for ages, and if I go off it it starts to decline again, so I guess while I'm on pred I'll be on pottasium. Hope you feel better after your rest day. take care
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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02-11-2009, 08:50 PM | #13 | |||
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Spoke too soon! Stupid MG! Stupid, stupid MG!! The sad thing is no one really inderstands how it affects the QUALITY of our lives......people take walking, swallowing, eating, breathing for granted.........something, sadly, we do not do!
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02-11-2009, 08:57 PM | #14 | |||
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I forgot to take my lunch time mestinon the other day.
Later that day, while I was eating tea, my lips wern't working, I was wondering why until I realized I'd forgotten my mestinon!! Yep once I took things like this for granted, now I try and laugh when they happen.
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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02-12-2009, 11:23 PM | #15 | |||
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Senior Member
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Today was a pretty great day! It actually started last night when I was so inspired by your walking that I got on my treadmill and walked a mile...I was so scared at first, since that is the first REAL excercise I've had since the surgery, but after the first minute I was clicking along @ a good pace! Granted, I only walked a mile but it still felt GREAT!!!!!!!
Then today I was a bum! I iced my face down and had my nails done and colored my hair! I know it sounds silly, but I really want to look pretty for karaoke tomorrow night! Mike's family will be in and I want to have a good time! I know my moon face shouldn't make me feel so self conscious but it does! How are you today? Are you feeling ok? How is your head? Did you a=have a good day? Erin Quote:
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02-13-2009, 06:04 PM | #16 | |||
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Magnate
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Hugss Erin and all,
Not sure I know much about MG, but learning some, I think my ailments are like MS or something like it they have not figured me out!! uggg Either way, I know what you mean about people not realizing what it means to struggle at just easy stuff in life. I have to be careful with exercise, if overheat I have problems. hugss and good days to you, sarah
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02-14-2009, 11:44 PM | #17 | |||
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How are you feeling? When do you get your dx? What do the docs say? What sort of tests have they run? How is your energy?
A friend of mine has MS and our trigger points are the same; heat, stress, etc.......we just chuckle about it....what else can you do? Are you on any meds? When you get some time, I'd love to hear from you! Erin Quote:
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