Originally Posted by redtail

Thanks Erin,

I'm doing ok, I went for 5 walks last week, quite a big thing. I get up at 7am, then head out around 7.45, I wait for the Mestinon to kick in, and walk for about 30 minutes.

Im hoping I'll get a bit fit, and lose some of the weight I've put on. I'm hoping I can keep this up, even If I have to drop it back to just a few times a week.

Today is the first hot day, its probably getting over 31C, tomorrow and Thursday are going to be up around 40C(104F) so I will be hibernating in my cool little house, with lots of fruit juice icy poles to keep me cool.

Its good to hear you are getting over your needle issue. I had a blood test last week, and the lady said they were having problems with the tubes not creating suction. We blew one vein, and then went into the other, and ow it hurt. I will be happy when one day I can stop having blood tests every month!!!

How are you doing, still good??

Originally Posted by redtail

Hi Erin,

I get migraines too. Have since I was little. In fact, I was taken off of dairy for nearly a year as a child........

I'm sorry to hear you aren't feeling well......I'd love to have an MG buddy here in SA to talk to.........

I know that 2morrow is going to be a great day! I'm just gonna lie around with an ice bag on my face and my feet up to reduce the swelling - @ least I haven't gotten the "buffalo hump" - YAY!!!!!

I was so glad to hear from you! You take care of yourself!

ErinI think I'm paying for my walking, I had a huge migrane last night, and today, my mg is not too good.

The fires are on the other side of the country from me, but it still makes me cry!!!



Today is hottish, and humid ICK!!! I'm taking pottasium, have been for ages, and if I go off it it starts to decline again, so I guess while I'm on pred I'll be on pottasium.

Hope you feel better after your rest day.
take care

Originally Posted by redtail

I forgot to take my lunch time mestinon the other day.
Later that day, while I was eating tea, my lips wern't working, I was wondering why until I realized I'd forgotten my mestinon!! Yep once I took things like this for granted, now I try and laugh when they happen.

Originally Posted by sabimax

Hugss Erin and all,
Not sure I know much about MG, but learning some, I think my ailments are like MS or something like it they have not figured me out!! uggg

Either way, I know what you mean about people not realizing what it means to struggle at just easy stuff in life. I have to be careful with exercise, if overheat I have problems.

hugss and good days to you, sarah