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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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02-17-2009, 03:12 PM | #1 | |||
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Saw my neuro today! He kept me @ 60 mgs for a while - doesn't want to risk another "crash" but wants me to have IV IG every month for several months! Finally! A real plan! I was tired of crashing and having to stay in the hospital!
Next month I go down to 50 and then after another round of IV IG - 45 and so on......... The funny thing is that @ the beginning, I was so scared of needles that I would cry and cry every time they placed the line, and now I "volunteer" to pull the line - just to irritate the nurses...... I go in 2 weeks from today to start another round. I feel like we are finally getting somewhere! Erin
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"Thanks for this!" says: | Jane1 (10-07-2016) |
02-17-2009, 04:44 PM | #2 | ||
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That's AWESOME! Glad to hear you are going to get things to work for you!
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"Thanks for this!" says: | erinhermes (02-17-2009) |
02-18-2009, 12:24 AM | #3 | ||
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Hi Erin,
How Awesome! I'm so glad your neuro has a plan for you! That has to be a relief to feel like you have an idea of what to expect. I hope you're feeling good tonight. Kristie Quote:
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02-18-2009, 03:40 PM | #4 | |||
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I am feeling awesome today! I am sooooo happy there is an actual "plan" in place now...........
I was able to work and feel pretty great about that as well.......... 09 is gonna be good! Erin
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