Hi Erin,

Its great isn't it to be able to look back on how bad we were and how far we have come!!

I think back to just how bad I was when something happens, like my lips not working last week, when I tried to eat some yoghurt. I had to giggle, because its been so long since my lips didn't work I forgot how amusing it can be, you think you've succeeded in eating something, but its still on your spoon, or worse on your lap!!! Yep its good to look back...
and realise just how far I've come.

Hey Erin!

It is so great that you have came this far, and your doing so much better! I am so happy for you! And I'm glad you and your drs have a game plan now! 2009 is going to be a great year for you!!

Kristy

A year ago today I was told I either had MS or a brain tumor that looked cancerous, lol.

It's awesome you're doctors are finally on the right track and you're starting to get better! Gonna be a good year :P

Redtail, lol.

Good night! A brain tumor? MS? Things look better already after that!

How are you today? Are you taking your meds? How is your wife?

You are RIGHT! 09 is going to be OUR year! OUR year!

Erin

No joke. I was stoked to find out I had MG considering the alternatives..not that this is any walk in the park, but from what I had read and the little I had experienced with the alternatives...I was actually OK with it. I was eventually told it was an arachnoid cyst, his name is George and he's in my temporal lobe, lol. Feel like I had to name it!

Yeah, I started taking my meds again. It's just confusing for me. During the week I feel exhausted all the time, I go home, eat, and just fall asleep(or lay down) most days. During those times I take 3-5 60mg mestinon a day. But, this weekend I was able to rebuild half of my fence and I hadn't taken any meds at all....It's just really confusing me because it doesn't make any sense at all. Sometimes I feel awful and other times I feel like I could jog a mile....frustrating and so confusing : /

My doc is considering steroids or Imuran for me later this year if I continue to convert, so we'll see(she's pretty sure I'm in the process right now). She says I'll be a lot easier to treat when that happens, so this year should have a lot in store for me

Isn't it wild how MG waxes and wanes? I mean I feel AMAZING one day and like crap the next........though I must say @ 60 mgs of pred I have more energy than I have in a while.........That feels AMAZING! I am able to take care of Mike and Devon - they are both sick right now, and cook dinner, and get all my other work done - I am sooooo grateful!

You and I have the same dark sense of humor - I love that!

I am on both Imuran and pred right now......I think they are gonna do the job! I was on Cellcept before and it just didn't work..........no biggie!

Great to hear from you!
Erin

Yes it is! I think that I need to REMEMBER how lucky I AM instead of what I don't have.......life is too short to dwell on the negative!


The best part (for me @ least) is that we have each other to turn to. After all, who really understands MG unless they have it!

Did you tell your doc about your lips? How are you today? I loved your pics, by the way - they are my screen savers...........I bet you could sell them and make some serious money, since you have the "eye".........

Can't wait to hear from you!
Erin