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Old 02-26-2009, 05:20 PM #11
erinhermes's Avatar
erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Thumbs up Hello Gbyrd!

Isn't it wild how MG waxes and wanes? I mean I feel AMAZING one day and like crap the next........though I must say @ 60 mgs of pred I have more energy than I have in a while.........That feels AMAZING! I am able to take care of Mike and Devon - they are both sick right now, and cook dinner, and get all my other work done - I am sooooo grateful!

You and I have the same dark sense of humor - I love that!

I am on both Imuran and pred right now......I think they are gonna do the job! I was on Cellcept before and it just didn't work..........no biggie!

Great to hear from you!
Erin

Quote:
Originally Posted by Gdbyrd View Post
No joke. I was stoked to find out I had MG considering the alternatives..not that this is any walk in the park, but from what I had read and the little I had experienced with the alternatives...I was actually OK with it. I was eventually told it was an arachnoid cyst, his name is George and he's in my temporal lobe, lol. Feel like I had to name it!

Yeah, I started taking my meds again. It's just confusing for me. During the week I feel exhausted all the time, I go home, eat, and just fall asleep(or lay down) most days. During those times I take 3-5 60mg mestinon a day. But, this weekend I was able to rebuild half of my fence and I hadn't taken any meds at all....It's just really confusing me because it doesn't make any sense at all. Sometimes I feel awful and other times I feel like I could jog a mile....frustrating and so confusing : /

My doc is considering steroids or Imuran for me later this year if I continue to convert, so we'll see(she's pretty sure I'm in the process right now). She says I'll be a lot easier to treat when that happens, so this year should have a lot in store for me
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