Well I went to my doctor today (primary care) and he cut the knots on my stitches so now I don't have to worry about them snagging anything.

Hopefully it will heal the rest of the way pretty quickly, but as of tomorrow I can take a shower without having to Seranwrap my leg! How exciting, a normal shower

Well except I wont be able to shave that part of my leg for a while. That could be a hairy situation

He also sent me home with equipment to do an overnight pulse oximatry (sp?) test. He thinks my breathing problems could be muscle weakness. He will be getting the results and so will my Neuro-Muscular Neurologist. Then he wants to see me in a month after we have the results of my muscle biopsy and this test. I really like this doctor because he is honestly concerned and he listens, but unfortunately he does not know what I could have or how to treat it. That's why he wants me to see a good specialist.

Anyway, I am kind of excited that my incision flattened out a little when he cut the knots from the stitches. That's what was pulling it together and making it so lumpy. I will still have a scar with some lumps, just not as bad as it looked before this morning.

I hope everyone is feeling well today.

Kristie

Kristie - how are you today? Are you feeling a little better? I am so glad your area "flattened" a bit - don't worry, it will go away soon!

Several people have asked me if I am going to have my thymectomy scar removed, heck no! I tell them it's my "badge o' honor" - after all, how many people do we know that have one? Plus, it is barely visible to the naked eye now. I am the whitest white girl alive, and it barely shows!

You take care!
Erin

My doc wanted me to push it a little tonight to see if we can do this recording when I'm at my worst. So I have done dishes cooked dinner and gave both kids baths. I shouldn't be able to move at this point by the way I have been feeling lately. But I think I'm actually starting to wear down really quickly now that I'm sitting.

You know I wasn't concerned at all about the scar, I really could care less. I hardly ever wear shorts anyway. But I was excited when I saw that it had flattened out.

Scars are just proof that we are living our lives. You can't make it through life without them, and they come with a story. Maybe some day someone will see it and ask about it and you telling them about it will change their life in some way.

Ha ha, whitest white girl, I don't know for a while I could have been a strong competitor for that title. Although within the last few years I have gotten a tan. Of course my tan for most people is what they would look like if they had not seen the sun in at least six months.

So how are you doing today? Have your hubby and son got any better yet? I hope so, it always makes me miserable to watch my family get sick. I would rather it be me.

I hope everyone is doing better today.

Kristie

Yes the thymectomy scar isn't too bad, especially compared to those from my neck surgeries! The thymectomy just makes it look like I have some cleavage!

You girls have a great night - Talk to you soon!

You're so funny, cleavage, ha! I guess if I ever have to have one my cleavage would hide the scar. My stitches were just for a biopsy so I'm sure this isn't anywhere near as long as either one of yours. I hope you're well today.

Kristie

It DOES give the illusion of cleavage - love it!!!!! LOL

MY SIL (who is built like a brick house) commented on that days after my surgery - I just laughed and laughed!

Next week is my IV IG - I am happy, but still get alittle bit freaked out by the whole thing - you'd think that after 35 of them (meaning 7 different treatments @ 5 days each) I would be immune, but the needles still scare me just a bit - dumb, huh? But it does feel so good! And I need take cae of my fellas, so I am packing all of my "goodies" for the hospital......I bring a big carry on with my books/magazines, my computer, etc - after all, who wants to be bored? Plus, I bring my pillows and covers...the nurses are so great! They store all of my stuff for me........and the best part is that I will be HOME when Devon gets here - with his food waiting for him......It has been so had on him............He is 16 but is my baby........

Take care everyone!
Erin

Hello! How are you today? I am feeling sassy! Devon and Mike are both better - thank God! Devon had a terrible sinus infection that was affecting his eye - really weird and Mike had a virus...........

Sounds like you had a full night! Isn't it amazing what we took for granted b/4? Who would have though it? I know I am totally excited when I get all if my usual stuff done, but it does give as a better appreciation of life.......sigh

It's funny, but I wasn't worried about my scar either. My Gram had a heart transplant back in 87 and after that, little things like scars didn't bother me.....my hubby and son were more worried about it then I was........No idea why!

IT is so beautiful here today! THe weather couldn't be more perfect! I'm going to try and get a few minutes sun........hehe!

Take care!
Erin

I'm so glad they're better.

You know last night wasn't too bad. I was weak, but not my worst. Today though I haven't been able to do anything. I'm just too weak to do anything. Anytime I get up it gets harder to breath. As long as I sit I'm okay.

I didn't get to do the overnight oximetry test last night. My doc wants my husband to take my blood pressure when I'm having a very hard time breathing and do the test that night. I'm sure tonight will be the night with how I'm feeling right now.

That's so great that the nurses are so good to you at the hospital, it makes things much easier. It's not silly to be afraid of needles. I have to give myself a shot three times a week (for just over a year now) and I still can't handle the sight of a needle puncturing skin. It makes me sick to my stomach. I can't even stand to see it on TV.

It's funny I'm deficient on vitamin D so they say I should be in the sun more, but the sun sucks my energy in less than five minutes. I can literally feel the energy drain from me. I hope you get to enjoy a few minutes without that effect.

I'm sure you're getting excited to go get more energy again. I hope it all goes smoothly for you.

Kristie

Oh, sweetie! I am so sorry to hear you are feeling poorly...........

You just rest and get to the hospital if you feel like you can't breathe! Also, please, please, please do not drink anything carbonated! It may - only may- cause you to choke a little bit. I am not trying to scare you. I worry about you, though.

We are in the same boat. Last year I was sooooooo sick and weak! It does get better! It was so hard having no one listen to me.........

Do you have really low blood pressure? Mine is always really low - 90/60 or so....I don't know if it is MG related or what...all I know is that I can't stand it! My 16 yr old son, Devon has HIGH blood pressure 140/80 - and that really scares me. He has gone through so much with this stupid disease.

I feel so stupid being afraid of needles......after all I've enough blood work....but they still freak me out! The worst part is the PICC line, but this guy Jerry is the MASTER! He got it in in under 5 minutes! 5 minutes!

Feel better and please,please let your family take care of you! Just try and rest!

Erin

I'm sitting in a recliner relaxing. My husband is working at the fire department today and my parents are gone camping so I have to take care of the kids. But it's nap time and I really only have to get up to fix meals. Even though I want to be able to get up to play with them and clean the house.

Thanks for the heads up on carbonated drinks. I also choke on potatoes and bread. I actually have to be careful eating or drinking anything. Taking medicine can be a joke. I don't think I make it through a single day without choking at least once or twice, which as I'm sure you know, can be very scary.

I will make sure that if I can't breath I will go to the hospital. Don't worry about that. My husband is an EMT two of our friends are paramedics. Also my husband is a Fireman and it is true how close Fireman are. The department really is our extended family. Also we live in a small town and our neighbors are always there for us.

Oh and yes I do have low blood pressure. Not as low as yours mine runs 110/70 usually. It's been a little higher lately because my cardiologist put me on a high sodium high fluid diet to try and help with POTS.

Okay I'm getting too tired to type, talk to you later.

Kristie