Hello all! This is going to be a big week......I'm going back for the usual
(IV IG) and being tested for another autoimmune disease, plus I am having
lots of tests run to see what is going on with my lungs...........

On the positive side, I feel pretty sassy right now! I am still a big scared though, so for those of you who pray, would you mind doing so for me?

I don't mean to sound like a big baby, but the THOUGHT of another disease
just scares the heck out of me..........and I am still wondering what on earth
those grey areas on my lungs are........

I hope you all feel great and have a fabulous week!

Take care!
Erin

I will pray for you Erin.

I'm sorry you're going through this right now. I hope the IV IG goes well.

If you do have another autoimmune disease I hope they are able to find and treat it quickly.

Please let me know what they find! I worry about you too. Your breathing has failed in the past and with all this going on I worry about you. But at least you will be at the hospital this week and hopefully you will get answer.

Anyway I hope that made sense and I hope you feel better real soon.

Have a great week.

Kristie

Erin,
I'll be thinking of you for sure! Did they say what other disease they are thinking of?

You're a strong, brave, woman and I know that whatever life throws at you, you'll conquer because you've got that wonderful, positiveness about you. Best of luck and keep us posted, ok?

Becky

Hi Erin,
I'll be praying for you and I'll ask my Mom in Canada to do the same (I swear - she's got some sort of direct line!). Hope you get some answers and enjoy your re-charge! Take care of yourself and stay positive girlie!! We'll be waiting to see how you got on!
~Kathy

Hey Kathy,

your Mum and my Mum must have the same line!!!!

Hey Erin,

I'll be thinking of you, and hoping that you don't have to get stuck with too many needles, and also get all the really nice people to give you all the relevant procedures.
take care

hey erin
hope they can get you back on the right treatment its such a worry for you and all your family and maybe their is'nt any other disease and that would be nice oh i saw my neuro the other day and he said i could run a marathon again just had my preds doubled stay positive
alan

Hey there! You are so sweet!

I am on my 2nd day - outpatient only - thank goodness! The PICC lne was my big worry - my blood pressure went to 160 - usually @ 90, but after one bum vein, Jerry was able to place it in under 3 min.....yay!

They are so sweet to me here! I am so thankful!

Last night I felt GREAT! I am being given 500 mL instead of the usual 400, but I figure it is a step in the right direction!

Enough about me - how are you? Your leg? Your little ones? Are you OK?

Can't wait to hear from you!
Erin

I was soooooo glad to hear from you! How are you? Are you getting stronger? Any problems swallowing/breathing?


What's the weather like? How are your kids?

What dose are you at roids wise? I'm still @ 60 for a while, but it is all worth it!

Missed you! Can't wait to hear from you!
Erin

How are you? Are you feeling better?

Things are GREAT here! I was in and out pretty quick yesterday, plus they are so kind to me here @ the hosp.....

My pulm did mention Lupus, but he said that he didn't know for certain......my big DAY for testing is this Friday.Needless to say, I'm gonna be doing a lot of praying!

Yesterday was GREAT! I was able to take care of my son and hubby - always makes me so happy! I'm gonna see if they'll let me keep me keep my PICC line in b/c I have quite a few bum veins now......now I just have to convince my neuro

What are your docs saying about YOU? Are you stronger?

Can't wait to hear from you!
Erin

Hey there! Are you still swimming?? That was just so inspirational for the rest of us!

I feel 100% today! Love that liquid gold!

I am going home nightly, and that makes all the difference!

Is the new school ready? If so, have you moved in yet?

Thank you for the prayers - my BIG day is Friday - I'm gonna be praying like mad until then!

Take care!
Erin