[momma3love]

Thanks to everyone that has responded. And I did not realize it would help this much to post my own problems. I have read posts off and on for awhile but have not posted. Mostly cuz I am too tired, cant see straight, or pc acts up. But I thank you all for knowing I can post and ppl will understand what I am going through.

It has helped a lot to learn that a lot of ppl go through the its all in your head run around. I have been convinced I have MG since my original dx 5 years ago. But I just got the "official" dx, finally positive antibodies. I was told anything from I had severe fibromyalgia that caused my weakness to you have some disease that your body shuts down when in extreme pain(sorry brain fart, cant remember what they called it.) So I really understand those that are very frustrated with docs. I have changed my GP 4 times in 5 years and seen 4 neuros. And countless other specialists. I thought I was odd, docs actually say I am an anomoly, because of my very strange combo of diseases, and sensitivities. But after reading about others I think I am just odd for the small community I l ive in.

Just wanted to add a very small vent, I promise. I called my neuro yesterday to confirm about my plasmapheresis before my surgery. This is the first one I have ever had by the way(plasma). And they informed me that they wanted me to stay in the hospital the whole week before surgery while having it done. That will be in two weeks! Um hello I have 3 kids, I am divorced. My ex, the kids' dad, is a long haul truck driver so he is not gonna be any help with the kids. Thankfully I live with my mom and boyfriend. But they both work and we did not know this was the plan til yesterday! Anyway just had to vent that.