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Old 04-02-2009, 07:13 PM #1
hcmiller92 hcmiller92 is offline
 
Join Date: Apr 2009
Posts: 24
15 yr Member
hcmiller92 hcmiller92 is offline
 
Join Date: Apr 2009
Posts: 24
15 yr Member
Default Thymectomy is BS

Every time I get into one of these forums, I see all the posts about thymectomy. After I give my usual rant, I get thrown off, privileges revoked permanently. Quite frankly, I don't give a ****. Somewhere in all of this there needs to be a reality check.

Thymectomies don't work. Period. No cause and effect has ever been demonstrated and this is a violent piece of surgery, causing irreparable and unnecessary scarring.

I can say this because I have returned from the death bed from MG. Most of you have never - and will never (and thank God for that) - ever, ever get anywhere near as bad as I've been. I was in the lowest decile (or highest , if you wish) for severity of MG. Dead is the next level.

Oh, sure, my neuro tried pushing the idea at me for awhile, but realizing that I had also gone to medical school for awhile (I like finance better) and had done all the undergrad chemistry, so I could be conversant with him and carry on a responsible conversation about the therapies, he dropped the whole thing. I am now almost 100 percent recovered. Time was I couldn't even eat, couldn't walk, couldn't swallow my meds. I would fall off my shuttle bus and land on the sidewalk on my way to and from work every day. And I never missed work, except for when I was in a coma last year (from MG) and when they ripped my sigmoid colon out last fall because of diverticulitis. Even when I did have two major abdominal surgeries, I was back at my desk at work immediately after they let me out of the hospital. They didn't want me driving but I had my car in the parking garage at the hospital and went straight to my desk at work two miles away and 96 hours out of surgery. I'm a tough son-of-a-*****. And you need to be tough to beat up on Mr. MG and get rid of him. He's public enemy number one.

I have never even had a CT scan to look at my thymus. I'm sure I've got one, however.

Don't buy into the popular wisdom or the ****** advice with the ****** science behind it about thymectomy as a treatment for MG. It isn't. Those snake oil charletons are on a slippery slope and instead of giving you enough of the correct drugs to make you better, they offer up a stupid solution that rips you open, cracks your sternum and causes terrible pain in recovery (YMMV). Do go get it out if you have cancer, but not because you have MG.

I may only be given the opportunity to bring this message to you once, so heed it well.

Love you all!

Curt

Last edited by Chemar; 04-02-2009 at 09:56 PM. Reason: Per Nt Guidelines..language.
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