Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 04-27-2009, 07:59 AM #1
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
Default How do you take your mestinon?


Hi all

How do you take your mestinon., when it says 3 x a day., how many hours apart? Thanks
whirlwind123 is offline   Reply With QuoteReply With Quote
Old 04-27-2009, 08:18 AM #2
mm80 mm80 is offline
Junior Member
 
Join Date: Mar 2009
Location: Australia
Posts: 18
15 yr Member
mm80 mm80 is offline
Junior Member
 
Join Date: Mar 2009
Location: Australia
Posts: 18
15 yr Member
Default

Quote:
Originally Posted by whirlwind123 View Post

Hi all

How do you take your mestinon., when it says 3 x a day., how many hours apart? Thanks

Hi,

ar 3 x day I would usually take it 4 hours apart after meals, Hope that helps
mm80 is offline   Reply With QuoteReply With Quote
Old 04-27-2009, 08:27 AM #3
ras1256 ras1256 is offline
Member
 
Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
ras1256 ras1256 is offline
Member
 
Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
Default

Quote:
Originally Posted by whirlwind123 View Post

Hi all

How do you take your mestinon., when it says 3 x a day., how many hours apart? Thanks
I took mine at 6 hrs. 6, 12 and 6. If you notice you are weak when you wake up, you should ask your doc for the timespan to take before bed. It's a time release version so it gives you coverage overnight. It is NOT for day use though, because they couldn't get the time release action to be real steady. It will give you coverage overnight, just not reliable enough for the daytime! It's also referred to as Mestinon 180.

I think you should talk to your doc about how they suggest you split this 3 dose Rx up. They must have had something in mind when prescribing it that way, based on their understanding of your symptoms.

Hope this helps.
__________________
Becky
ras1256 is offline   Reply With QuoteReply With Quote
Old 04-27-2009, 01:23 PM #4
Scots Kat Scots Kat is offline
Member
 
Join Date: Feb 2008
Posts: 175
15 yr Member
Scots Kat Scots Kat is offline
Member
 
Join Date: Feb 2008
Posts: 175
15 yr Member
Default

I took mine four hours apart when first diagnosed - now I take 60 mg every 3 hours - like clockwork. I take one about 20 mins before I get out of bed in the morning and then every 3 hours. Thankfully I don't get an upset tummy from them so I don't need to worry about taking them with food. My best suggestion to you (other than speaking to your doctor) is to listen to your body. I could always feel my eye starting to droop or my arms starting to feel heavy.

Good luck!
~Kathy
Scots Kat is offline   Reply With QuoteReply With Quote
Old 04-27-2009, 02:10 PM #5
neutro's Avatar
neutro neutro is offline
Member
 
Join Date: Nov 2007
Location: France
Posts: 346
15 yr Member
neutro neutro is offline
Member
neutro's Avatar
 
Join Date: Nov 2007
Location: France
Posts: 346
15 yr Member
Default

I take mine at 9 am, 4 pm and 11 pm. When I forget the 4 pm, I feel it at about 6 pm…
I therefore think that Mestinon should be taken when needed, try different schedules and keep the one which fits you best. It could also vary according to your activities…
When I was on a 5 x 60 mg Mestinon schedule, I took also Timespan Mestinon during the day, although it is much more expensive, it can also be easily broken in two (i.e. 90 mg) and I appreciated that convenience when I needed to stay without medication for about 5 hrs during the afternoon (bridge tournaments, for instance…)
Maurice.
neutro is offline   Reply With QuoteReply With Quote
Old 04-27-2009, 03:26 PM #6
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default

Ditto on the comment that you need to call your neuro. They are supposed to put the dosing instructions on the prescription!!! If he didn't, he needs to tell you what he wants you to do. You should NOT follow anyone else's way of taking Mestinon because everyone with MG is different. I am on 90+ mg every 3 hours, round the clock. Not a good idea for you to do that!

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
Old 04-27-2009, 04:23 PM #7
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
Default

Annie,
All my bottle says., 3 times a day., that was it. I go back to this neuro on wednesday to get my ct results., and I just have to put up with him till I can get into the mg specialist who is booked till August , but they are trying to get me in earlier if there is a cancellation. This neuro just makes light of everything., I just do not feel comfortable., but I know I will only have to put up with him temporarily.
whirlwind123 is offline   Reply With QuoteReply With Quote
Old 04-28-2009, 10:48 AM #8
leaningin's Avatar
leaningin leaningin is offline
Junior Member
 
Join Date: Mar 2008
Location: Reno, NV
Posts: 40
15 yr Member
leaningin leaningin is offline
Junior Member
leaningin's Avatar
 
Join Date: Mar 2008
Location: Reno, NV
Posts: 40
15 yr Member
Default Mestinon mess

[I don't know how any of you take Mestinon. It makes me so sick to my stomach that I cannot function. Explosive diaherrea! Has anyone else encountered this side effect? Any ideas how to mitigate it?


QUOTE=whirlwind123;501701]
Hi all

How do you take your mestinon., when it says 3 x a day., how many hours apart? Thanks[/QUOTE]
leaningin is offline   Reply With QuoteReply With Quote
Old 04-28-2009, 03:46 PM #9
Maxwell'sMom's Avatar
Maxwell'sMom Maxwell'sMom is offline
Member
 
Join Date: Oct 2006
Posts: 371
15 yr Member
Maxwell'sMom Maxwell'sMom is offline
Member
Maxwell'sMom's Avatar
 
Join Date: Oct 2006
Posts: 371
15 yr Member
Default

Yes, I had horrific diarrhea. So my doctor had to write a script for me. I can't go to sleep at night unless I have my mestinon. I awake unable to breathe well with out it.
I also echo what others said about ask your neuro how you are suppose to take yours. Everyone is different. I took mine every 3 hrs, and sometimes every 2. So this is why it's so important to check with the nurse at his office.
Can't wait for you to see a Good Neuro.
Love Lizzie
Maxwell'sMom is offline   Reply With QuoteReply With Quote
Old 04-28-2009, 04:11 PM #10
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Teeth Hi Leaningin!

Are you taking it with food or with food in your stomach? I learned by having an accident that food is the only thing that works - for me.....Are you able to swallow enough food to coat your stomach? If not, you need to be in the hospital NOW!!!!!!!

I am not trying to be a downer, but I do know that most MG''ers are type A and think we can handle anything, but if you are unable to swallow enough food to coat your tummy or are losing a lot of weight, you need to see someone ASAP!

Big, big hugs!
Erin
Quote:
Originally Posted by leaningin View Post
[ow any of you take Mestinon. It makes me so sick to my stomach that I cannot function. Explosive diaherrea! Has anyone else encountered this side effect? Any ideas how to mitigate it?


QUOTE=whirlwind123;501701]
Hi all

How do you take your mestinon., when it says 3 x a day., how many hours apart? Thanks
[/QUOTE]
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Has your Mestinon become less effective? loisba Myasthenia Gravis 15 10-15-2013 12:15 AM
Mestinon.......Questons..... whirlwind123 Myasthenia Gravis 5 04-27-2009 02:08 PM
Questions about mestinon jaynurse05 Myasthenia Gravis 2 03-20-2009 06:26 PM
Mestinon, Frustration, Denial, etc. KTunes Myasthenia Gravis 19 10-09-2008 03:41 PM
twitching & spasms w/ mestinon nancylee Myasthenia Gravis 5 11-06-2007 06:20 AM


All times are GMT -5. The time now is 01:43 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.