I get 1 infusion of IVIg every three weeks - lasts about two and a half weeks for me so I have a few days either side of the infusion that I don't feel very strong

Maybe it is just psychological.(for me, I mean???)...but I felt better this morning...after my very first IVIG infusion treatment...Is this normal?? I am completing my 2nd one now....However..I have also been on bed rest too.

I had no side effects except for my blood pressure dropping in the beginning and then increasing in the end....weird huh? no fever, no headache, or chills.

I know what you mean...I felt AMAZING after my very first treatment - I think I was just so weak that ANYTHING was am improvement! LOL!

MY blood pressure does the same thing....I think that is pretty normal. Just relax and enjoy your "go go" juice.....it works miracles for some of us - wish it could do that for ALL of us!

I go in next week for a 5 day infusion. YAY!

Cannot wait!
Big hugs!
Erin

My doctor has just started on me on 500 mg. Cellcept/three times a day. My cost (with insurance) is $800./mo. Can anyone tell me what you know about the research and benefits of cellcept vs. Imuran?

Once more, who can explain these costs…? In France, the full cost of a monthly Cellcept consumption at 3/day is 600 US$…
Cellcept is reported to have less side effects than Imuran but its effectiveness is questioned by some…
I 've been taking Cellcept for 21 months now and I'm rather pleased with the results but since I'm also taking Pred, I don't know which medication is really doing the job…!
Maurice.

From what I have heard, Cellcept is the new and improved Imuran = lots more money + less side effects. I really liked it, but was worried about the whole PML thing, but then again there are side effect warnings for EVERY drug out there!

Sadly, Cellcept didn't do it for me, so I am now on Imuran. It takes longer to take effect, but I think it is doing it's thing.

Take care!
Erin

I am having a mind blowing headache after receiving my IVIG this past weekend.

If this is unusual for you to have that kind of headache, I think you should call your Neuro ASAP, to report it.

You had mentioned the BP fluctuation, and I'm probably just hypersensitive to such thing right now, because I had an unruptured brain aneurysm coiled in Jan this year. One of the symptoms of a rupture annie is "the worst headache you can imagine".

If mind blowing falls in that category, please get that checked out. You may even want to head straight to the ER if it is "the worst...."! Please let us know how you're doing.

I started out on imuran, but my neuro changed me to cellcept to see if I would do better on it. Thankfully I seem to have less really bad ups and downs, and I'm back down to 15mg of pred with no flare ups.

Thankfully here in Australia it costs me $5.50 for a prescription(1 months supply) due to our Prescription Benefits Scheme, thats all any(or most, some medications arn't on the scheme) costs, and when I reach my limit, I don't pay for anything, this usually happens around October, so I have 2-3 months where I get all my medication for free. I really to love our Hospital and prescription arrangements over here.
Kate

Hi Cricket,
Do you know that you should drink plenty of water (at least 1.5 liter per day) during IVIG to avoid headaches?
Another factor is the infusion speed, they should start slowly (about 3 to 4 hours per bottle) then inscrease the speed if everything goes well.
Maurice.