Hi Cricket,
Do you know that you should drink plenty of water (at least 1.5 liter per day) during IVIG to avoid headaches?
Another factor is the infusion speed, they should start slowly (about 3 to 4 hours per bottle) then inscrease the speed if everything goes well.
Maurice.

I had a few soda's prior to the infusion...but next time...I am drinking tons and tons of water before, in between....and after!!

Also, infusion went in over 3 hours....2g/KG...I will also ask them to slow it down....

But the problems didn't start until the next day...after I got home...Doctor told me to stop taking the imuran too...

Hey hon! Are you feeling better? How is your head? I am so sorry you are having such a rough time - just ain't right........

Why did your dr take you off the Imuran?

MG just sux! It takes away all normalcy in our lives - there is no in between. Either we feel great or awful - no in between......hate that......sigh......

Have you asked about the plasma exchange? It isn't fun @ all, but neither are mind blowing headaches or "house arrest"...........

Hopefully they will slow it down - the rate of the IV IG - I loved having mine going as fast as possible, but my neuro made them reduce it from 360 mL and hr to 150 (max) in order to prevent kidey damage.......

You just take it ez and take good care of yourself - you are lucky to have such a great hubby!

Big, big hugs!
Erin

Today is a good day! Mind blowing headache has been reduced to a mild ache in my neck...no pain medication needed (except for 2 aleeve)...however, I have been so lazy and stayed in bed--seriously--laid up in bed sleeping all day! I am hoping for more energy tomorrow!!

The doc thought that the imuran was just too much for my system to handle--since I reacted so violently to the IVIG....however...I honestly believe the IVIG has helped me--double vision is gone, eye droop is gone, blurry vision is gone...and today..the headache is much, much better!

Keeping my fingers crossed that I am turning the corner..on this headache...

Steph

So glad to hear you are feeling better!

Enjoy your time on the sofa - you and your body DESERVE it! IV IG is really hard on the body......

Erin