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-   -   What do you do well? (https://www.neurotalk.org/myasthenia-gravis/86557-what-do-you-do-well.html)

ras1256 05-13-2009 10:31 PM

Annie,
OMG! Who did that to you (preg test)?
I have actually yelled at a doctor. It's the first neuro I had that was so egotistic and blacklisted me. He said "well your depressed", and I yelled "Well, DUH!, One day I'm walking around and the next I'm unable to do anything and you are saying I can't have the one medication (Mestinon - he had taken away my prelim dx) that helps me at all!"
It didn't help anything, but made me feel a little better. He'd already told me my problem wasn't neuro - he'd run all the tests (fibber - there were lots of tests left).

Annie, I don't know if you're in a position to get a motor home (used, whatever), but it is wonderful! We can go, and I can go lay down whenever I need to, don't have to walk far at all for the bathroom, kitchen, anywhere so I have more energy for the "playing". And the escape and change in scenery always seems to rejuvinate my spirits. I love just sitting in my CO mountains and letting my brain go blank - one of my forms of meditation.

Stephanie, kids do love looking and pictures and hearing stories that go with them. That's so neat that you have put all that together. Generations to come with no doubt love going through it all as well. My mom got a little family history book her uncle had put together about the family's origins in Colorado. It was so neat to read and see these old pioneer type pictures of school house and such! I'm sure you will be able to continue it. Maybe not all the time or for as long periods as you have been used to, but any will be fun!

You all are very creative! I'm most impressed with our group here!

Becky


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