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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#11 | |||
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I may get chewed out for this but I'd either cancel my appt or not tell the neuro that I am still on the pred.....no need for a big confrontation.......
When are you going to get in with your new neuro? If you are close to your GP, have them call the bad neuro and tell them that they recommended you STAY on the pred for the time being..... I for one would cancel the appt and just tell them I found a new neuro. That way you don't have to go - just my 2 cents! Big, big hugs! Erin ![]()
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Erin . |
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#12 | ||
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My GP called and said blood work is okay, white cells a little up ., but he knew that with me being on prednisone., he called me himself., which is nice he said he wants me to taper off, I told him I am and Amanda his nurse gave me the taper yesterday., he said good., I told him that the Bad Neuro wanted me to come see him tomorrow and I asked him if it would be alright if he just took care of me till I can get into the new good neuro., as what is the sense on me going back to the bad neuro that I have not trust in., and have him want to start me on other meds etc., ...he said fine he would take care of me till I get in with the new good neuro and he is also trying to get me in there as soon as possible...I called the bad neuros office and just cancelled the appt., for tomorrow. I said nothing else.I have an appt with the good neuro for end of August., and they are to call me with any cancellations, in the interim the gp says if I have a major issue., he would send me to the hospital the GP and the Good neuro is at., and they would take care of me.
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#13 | ||
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Member
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Sounds like you have a great GP and are in good hands.
Best of luck with this. Cheers, Brian |
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#14 | |||
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Member
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I think you have made a good choice whirlwind, your absolutely right.
Mary |
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#15 | |||
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Member
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SCARY! I am glad you GP helped you. It is scary when we have to be our own docs! I am just trying to learn my "body" so that I can realize when I am getting tired...I go and go...until I crash...gotta learn to slow down BEFORE I crash.
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#16 | |||
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Member
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Its so good that you have a GREAT gp, they are worth thier weight in gold I think.
Hope you get a "cancellation" appointment with your new neuro soon!!
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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#17 | |||
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Member
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Hi Cricket,
I use to be like you and go til I crashed ![]() take care and take it easy ![]() Kate
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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