Originally Posted by Pat 110

Oh boy Lizzia can I relate to that. I had a hard time replying to this because it was such a painful time for me. My Mother was in a nursing home and I would get the same crap from the staff for years. On top of that, I'd get it from my three aunts as well. They knew I was sick, but they just didn't acknowledge it. Less than a week after I was home from having my thymectomy, they would call me and yell at me for not be with my mother. When my husband took me to see her, then I got the crap from some of the staff too! It was horrible and I was too sick and weak to even stand up for myself. I always put on a happy brave front for my Mom, she didn't need the stress of having to worry about me. But, the first time she saw me after the surgery she knew I was not well. She didn't understand the MG, but she knew enough. Without saying anything to me, she called a meeting consisting of 8 staff members and my three aunts and basically...gave them all hell! After putting up with it for three years, no one got on my case again. My Mom passed away two years later, but it was the best two years we ever spent together and I miss her dearly. Boy, that was very difficult to write. Thanks for listening.

Hugs,
Pat