The 'roids may be contributing too, I don't know, but the sweating, excess saliva etc is a known side-effect of Mestinon.

I too get all those symtoms from mestinon, but not every time. Sometimes they let up or go away after an hour or so. They work so well on the MG symptoms...I never leave home without them.

Stashes thoughout the house & purse, of mestinon, so I can grab & pop as needed ! LOL....
Mary

xmas, when I increased my mestinon, my whole body twitched inside, it was a weird feeling. It freaked me out too and I was ready to call the Dr. too, but I waited it out.

Erin,

I am having a great day! I was able to put away the laundry, do the dishes, and play outside with the kids. It is 10pm here...and I still feel great and have lots of energy....

My husband and kids were so happy to see me "like my old self again today"...not sure how this will last...my neuro told me to call him the minute I start feeling my energy level drop....so that I can get another IVIG "fuelup".....Maybe this will last for a couple of weeks..

Please do not laugh...but I have noticed that I am sweating between my legs/thighs if I cross my legs during my sleep....I wake up with wet legs...I thought I had peed on myself....but it is just sweat.......this has been happening for the past few weeks. I know "too much information"...hehehee....but this is driving me crazy! I take my bath at night...and now I am having to take a shower in the mornings too....then I feel sweaty/ sticky during the day from all the sweating....

One of my co-worker had botox on her underarms to stop the sweating....she doesn't have any medical issues...just sweats constantly.

Hi Stephanie,

So glad you've been able to do all those things, feels good doesn't it!!

I also have "sweaty between the leg when you sleep syndrome", and always wear 3/4 length pj's. It has improved over the years, I think as my pred has been reduced, I'm now on 15mg alternate days. I have also noticed that I seem to sweat more when Im on the contraceptive pill, its amazing what our bodies do.

I think its great we can all talk about all sorts of stuff here, and someone somewhere will have some help or insight.

Kate

Does anyone else have a problem with explosive diaherrea on Mestinon. It just tear up my gut and I'm afraid to go anywhere when I'm on it. Any advice?

That is just one of the side effects I would get when I had to take it all the time. I understand completly what you mean about being afraid to go anywhere. For me, it was on the third day of taking it that I would get it that bad. Fortunatly, I can go days without having to take any, so it dosen't get to that point anymore. My neuro prescribed a med to help with that side effect, and I'm sorry, but I forget what it was called. I'm sure many here would know. If you call your Dr. he/she may prescribe something for you. Also, as your body adjusts to the mestinon, you may find it letting up some. It may help too, if you always take it with food or after a meal. Sorry I couldn't be of more help.
Pat

Like Pat said, always take it with food. I find breads best with it for keeping my guts from twisting with it. My neuro warned me of diarrhea as a possible side-effect and told me to take immodium or Pepto Bismol if it happens. Luckily for me, it has not been an issue.