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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#11 | ||
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The 'roids may be contributing too, I don't know, but the sweating, excess saliva etc is a known side-effect of Mestinon.
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#12 | ||
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I too get all those symtoms from mestinon, but not every time. Sometimes they let up or go away after an hour or so. They work so well on the MG symptoms...I never leave home without them.
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#13 | |||
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Stashes thoughout the house & purse, of mestinon, so I can grab & pop as needed ! LOL....
Mary |
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#14 | ||
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xmas, when I increased my mestinon, my whole body twitched inside, it was a weird feeling. It freaked me out too and I was ready to call the Dr. too, but I waited it out.
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#15 | |||
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Erin,
I am having a great day! ![]() My husband and kids were so happy to see me "like my old self again today"...not sure how this will last...my neuro told me to call him the minute I start feeling my energy level drop....so that I can get another IVIG "fuelup".....Maybe this will last for a couple of weeks.. ![]() ![]() ![]() Quote:
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Cricket . |
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#16 | |||
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Please do not laugh..
![]() ![]() ![]() One of my co-worker had botox on her underarms to stop the sweating....she doesn't have any medical issues...just sweats constantly. Quote:
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Cricket . |
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#17 | |||
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Hi Stephanie,
So glad you've been able to do all those things, feels good doesn't it!! I also have "sweaty between the leg when you sleep syndrome" ![]() ![]() I think its great we can all talk about all sorts of stuff here, and someone somewhere will have some help or insight. ![]() Kate
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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#18 | |||
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Junior Member
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Does anyone else have a problem with explosive diaherrea on Mestinon. It just tear up my gut and I'm afraid to go anywhere when I'm on it. Any advice?
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#19 | ||
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Pat |
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#20 | ||
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Like Pat said, always take it with food. I find breads best with it for keeping my guts from twisting with it. My neuro warned me of diarrhea as a possible side-effect and told me to take immodium or Pepto Bismol if it happens. Luckily for me, it has not been an issue.
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