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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-09-2009, 02:48 AM
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#31 | ||
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Its sooooo good to have you back babe!
 Missed seeing you ard when I was back...Thanks for your encouragement, am trying very hard to be brave too, and not think too much about everything. Am not feeling very good today, arms aching badly, and like I mentioned to Nicky, the fasciculations are driving me crazy. That word's a mouthful and I still have to paste it cos the spelling drives me crazy. Lol. I've been lying down to rest, and its like the muscles are having a performance, jumping up and down. My docs are letting me rest at home, with instructions to return if my condition deteriorates or if new symptoms pop up. My next appt's 6mths later, and I'll have to do another emg then. My plan for myself though, is to try and exercise, and get my strength back by increasing the distance daily. Haven't really succeeded, the swaying from side to side happens after about 200-300m. On certain days, its better, on others, i wake up feeling stiff and hav cramps throughout the day. But... All of you makes all this much more bearable! Its so amazing to find people who understand.  I've sort of given up telling friends abt what I feel perhaps when I'm more ready I shall do so. Yes... 2009 is gonna be our year!  Quote:
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07-09-2009, 07:59 PM
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#32 | |||
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Connie,
You are such an inspiration! Keep the faith and let us know how you are doing. We will all believe that 2009 is our year!!! Big Hugs to you, Simon |
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07-10-2009, 09:47 AM
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#33 | ||
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Hi Connie,
I am so sorry for all you have had to go through and still not get the answers you were hoping for. You have such a wonderful attitude, are so compassionate, great sense of humor and a terrific young women. These will take you far in your recovery. My thoughts & prayers are with you. Take care.  Hugs, Pat |
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Hi Erin!!
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