What an amazing story! The one common factor with ALL of us is that we were considered "crazy" b/c we were not able to do "normal" things.....So very sad.

I must say your sense of humor and upbeat attitude are amazing! I've seen a lot of people become really bitter and hateful after a while, so your story in particular touched me........

I too feel blessed and lucky to be here and am trying to turn a real negatie into a positive - as bad as I have ever felt, there is always someone somewhere feeling worse, so I keep that in mind..............


I've also learned to not take anything/anyone for granted - EVER! We have been given the rare opportunity to experience things from a different point of view and I do not take that lightly.........MY faith has also gotten me through the lowest points......I was very, very bitter for a while there and needed help getting through the dark times so I found a fabulous church and am so thankful!

I would like to do a "Day in the life of MG" for people who do not understand our disease....maybe it would help, maybe not, but if it helped ONE person understand then it would be worth it!

Hang in there!
Erin

Connie, I could feel myself in your story, what a strong person you are. Even though we are limited in what we can do, we can all find a feeling of accomplishment, in new areas. What a positive person you are, & a joy to know !
Mary

Your story is very similar to my story, I really feel for what you are going through. I went 15 months without a diagnosis but I can actually tell you that it can get better. I would do a little searching and try to find a good neuro in your area and have your dr. refer you. I was going nowhere with my first neuro because he wanted to wait and see if the symptoms went away. My second neuro was very interested in my case and finding a diagnosis. This site is an excellent support system ... so glad that you found it.
Take care ~ Melanie

Thank you for the encouragement guys!

Yes Brian, I do agree that humor is indispensable!! In fact it makes our lives much better off! Found a lot of it in the posts that all of you leave behind too. And thanks so much for all the wisdom especially the links that you post!

Thanks Erin! Your love for everyone around here touches me too. Am so glad whenever I feel aches in my body, as the aches definitely beat not feeling anything at all. Met someone who has been paralyzed from the neck down since he was 18 (he's close to 50 now), and I just feel so blessed that I'm still able to feel. Am so glad you found a fabulous church! My movement's limited so haven't been able to get to church for a while.. But there's lots of videos online to watch!! Whenever u need someone to talk to, feel free to drop me a mail! "A day in the life of a MG.." That sounds interesting.. It'll be fun to see what we all do in a day!

Thanks Mary, you're a great joy to know too! You are a very strong person as well, and your story inspires me. Let's all run together, and beat MG hands down!

Thanks Melanie, managed to locate some good neurologists, and am following up with them. One of them recommended someone overseas so may be flying over too. Anything to get my symptoms sorted out!

Connie, did they actually give you a DX of Myasthenia Gravis? Seems you are a fighter with a true spirit. Make sure you push those Dr.s and don't let them get away with "it's in your head" have you at least had a tensilon shot test? You sound like you need medication and or plasa exchange right away. I am glad you found this sight and hope you make many friends. This is a great place to share happy and sad days. Welcome!

Nope, they've not given me a DX of MG. Thanks so much for your encouragement Joanmarie! Guess this MG brings out the fighter in all of us..

I've not had a tensilon shot test, my MG fluctuates a lot in one day as well, so I'm considering working myself out so that when I see my neuro, my condition's at its worse so that he can do his best to find out. I've only done an emg and am waiting results on my antibodies test. None others related to MG. But am also in the midst of finding a good neuro to go to as my current one is not keen to work on a diagnosis cos he feels it won't help me. I just finished a one hour conversation with my friend and now my mouth feels so tired. Lol. Do any of you get tired from talking??? I never used to feel tired in the mouth from talking.

Wow Connie, what a lot you have been through, and to be able to remain positive is great

Kate