Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 05-20-2009, 12:57 AM #11
ConnieS ConnieS is offline
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ConnieS ConnieS is offline
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Heart Hugs Annemarie!

Hey hon, hope you're feeling better today. Sorry to hear about your strained relationship, is there anyone whom u can lean on for support at this moment? We're all here for you on the other end of the line, but it helps if there's someone near you who can keep you company! I'm not too sure where you are located, but are there organisations who refer jobs to you? Perhaps an administrative job would be good? Or a part time job? Doing things you love and enjoy is a great idea! Take your mind off the things by doing those wonderful things you enjoy and it'll help in lifting up your spirit. With MG I've found that it really helps to avoid letting our emotions get in the way. Is there someone who can talk to him? If there's anything that you need someone to talk to, feel free to let us know!

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Originally Posted by annemarie View Post
Thank you, all of you. My mg is in early stages and mild so far. Although, looking back, I've had bouts of weakness, like my arms weighed 100 lbs. and I couldn't do anything but lay there. I don't know what's what anymore. I skipped my neuro appt. I was very depressed the night before and just didn't care anymore. I have a marriage in "crisis", so that just doesn't help things at all. He's angry at my medical bills and my script bills. I wish I could work so I could support myself, but I haven't found one that lets me just sit there all day!! Thanks again for all your responses. I will be more aware of my body now and realize the signs before they get too far. Annemarie
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Old 05-20-2009, 07:09 PM #12
annemarie annemarie is offline
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annemarie annemarie is offline
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Thank you, guys. I feel better just knowing I can get help and encouragement with the click of some buttons.

I hope I can recognize a crisis early. It just makes me nervous.

I do have a small boutique with a close friend that's more like a hobby for us. "Working" means sitting around chatting. We barely make enough to cover the rent, but we don't care because we have so much fun. Actually, my friend suggested it two years ago when I was feeling sorry for myself and feeling like I was useless.

I think I'm done in for the day. I can barely keep my fingers moving.
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Old 05-21-2009, 10:02 AM #13
Pat 110 Pat 110 is offline
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Hi Annmarie,

I too am sorry for what you are having to go through. I am so fortunate to have a wonderful supportive husband. Try to rest as much as possible, and try doing something you enjoy that doesn't tire you, to help relieve some of the stress. We are all pulling for you. Take care.

Pat
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