NeuroTalk Support Groups - "Check In" Thread

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - "Check In" Thread (https://www.neurotalk.org/myasthenia-gravis/87194-check-thread.html)

Wow am glad to see all of you posting!! ITs soooo good to hear from all of you.

Kate: Welcome back!!!! Thanks for sharing the photos! They're beautiful!! How's everything with you?

Lizzie: I'm so glad you're back! How have you been?? Have not heard from you for awhile!

Pat: you're such a sweet person! Lol. I love farms and cemetries too. But we don't have that many cemetries left around here. Due to lack of space. :cool:

Becky: yes! It'll be really good if they could just combine the two. Then we'll get the best of both worlds! The hospitals here are working towards that, they've started having traditional med courses in Uni. But its still a few years before the first batch of students actually graduate, and we still need to give them time to accumulate the experience. :p

Erin: you're such a gem honey! Always love hearing from you, you're like this bright spark thats waiting to burst out in flames to light up everyone's lives. Thanks for allowing me to stay here!!!! :D

Mary: how have you been?? How's all the tests going?

Loveee all of you!!

Bump and checking in...

Just wanted to bump this thread up!

And also checkin in at the same timeee.... Have been feeling quite lethargic these days, so havent had enough energy to read through all the posts. Sorry if I've been so quiet! Just know that I'm reading, though sometimes don't have the energy to reply.. Have been trying to do small tasks around the house, like packing some stuffs, clearing out boxes, folding clothes. Tho am exhausted just by folding the clothes, its still nice to be able to do some useful things around the house. :D Am having some problems balancing myself now, hope it starts getting better soon, before I fall all over the place. Had my first dental visit since my symptoms, quite an experience, had the dentist and the nurse trying to pry open my mouth cos I didn't have the energy to open it. Lol. Had to cut off part of my cheek as i was biting on it, and it started getting inflammed. Am now trying to master the art of eating on one side. Fatigue's really getting to me now, am waking up feeling like I never slept at all. Nevertheless, its still a beautiful day here, with nice cool weather. :stirthepot:

So here's a small request, can everyone start checkin in? I would love to read through every thread to find out how everyone's doing, but sometimes I just can't gather enough energy to do that. So by checking in, we can find out how everyone's doing!

To all those who have just come to this forum, WELCOME! Am sorry didn't get a chance to welcome all of you, just feel free to ask any questions you may have!! There are so many angels around here! :hug:

Hello to all,

I am having a very good morning and my eyes and legs are doing much better so far today, so I am happy about that.

Connie, I am sorry to hear you are not doing well. Hope your cheek heals quickly...ouch. Glad to hear you are doing a few things around the house, but do take it easy. Packing boxes isn't exactly a small task. I hope you are getting out for some fresh air. I know you enjoy that. Take care of yourself and as always I will keep you in my thoughts & prayers.

Hope everyone has a good day today. Take care.;)

Hugs,
Pat

It's me !
Got all my labs results, just had to redo 2 of them, because they couldn't prcess them for some reason, for vasculitis. They are showing what we already know, muscle wasting, malabsorbtion, neuropathy. Nerve & muscle biopies on the 28th are scheduled, & will go to the root of the problem, & give the diagnosis the doctors believe. But we all know what that leads to ......... More pred. basicly, I was told it looks like I have another neuro muscular diease on top of the Myasthenis gravis, that damages outside the junction.
Stay cool everyone !
Mary

Pat: I'm feeling better today, the soreness is almost gone. Starting to eat again! Am so glad you're feeling great! Its always happy to wake up and find that your body's in a great condition!

Mary: Wow! ITs great to hear from you! Hmmm.. Am hoping the results turn out great for you, do hope that you do not have another neuro-muscular disease! Why are they suspecting this? Will be praying for you, do keep us updated on how it goes!

Quote:

Originally Posted by ConnieS (Post 541173)

Hi Connie,

Glad you are feeling better and the soreness is almost gone. I'm still waiting for the day I wake up and find my body in a great condition...think that's going to be a very long wait. LOL Take care.;)

Hugs,
Pat

Grrrr, I'm having a bad day, trying to convince my body I havn't run the olympic marathon, just washed my hair. I'm also in pain..........but apparently thats in my head, because non of my drs really know what it is...........ah well tomorrow will be better.
Kate

Hi Pat, IT won't be a long wait!!! Will keep you in my prayers, that you'll have a great day everyday. *wink*
Take careee! :hug:

Hi Kate, lol. olympic marathon. Yes, tomorrow will be better! How long has the pain been there? Can they do anything about it? Do hope it goes away soon!

Hey Connie, Thanks, I keep you in my thoughts & prayers too. Hope you are having a good day.

Hey Kate, Sorry you had a bad day yesterday. Where are you having pain and why don't the Dr.s know what's causing it? I hope you have a better day today. I'll be keeping good thoughts.

Take care & hugs to you both.;)
Pat

Connie and Kate,
You are both in my prayers! May God give both of you strength!! God Bless both of you!
Big Hugs,
Simon